Chronic inguinal pain

Posted by Keri @keri, Oct 17, 2011

I am 38 years old & have suffered an injury to my ilioinguinal/hypogastric nerves after a gynological surgery. My nerve pain is in my right groin & right pubic area, occasional travels down my inner thigh. I am on Gabitril (antineuroleptic), methadone, tramadol & Zoloft for pain control. I had a peripheral nerve stimulator implanted in my abdomen, but it needed to be removed a yr later due to a chronic infection @ my incision site. It relieved about 30% of my pain but could have helped more if it didn't get the infection. My life has completley changed. The pain has limited me on doing things I used to do.
I have an appt. next month in Rochester, Mayo w/ Dr Mathew Pingree, @ the pain clinic.
Has anyone suffered this type of pain? Has anyone had pulse RF or RF ablation done? I'm scared to have an ablation or a chemical ablation due to the risk of developing an neuritis that could make my pain worse.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

@fmassad

Hi I'm from Brazil and I have pain in my rgith groin and right pubc area and it started just after a laparoscopy for severe endometriosis. My pain started 3 years ago but it is getting worse.
I went into many doctors and some of them have told me that it proably is some damage in ilioinguinal nerve and hypogastric nerve.
My pain stars into my abdome and goes down to my pubs and my leg.
They tried to block these nerves which provide some temporary relief to my pain in first, second and third tried but in my fourth try it didn't work and my pain got worse.
I'm now doing a treatment in the best brazilian public hospital - Hospital das Clinicas.
i'm taking tramadol every 6 hours and Lyrica twice a day but this is not able to stop my pain. i'm also doing physiotherapy( trigger point massage) which provides me some relief.
This pain has changed my life because of this I'm using a walking stick, I can't drive because the movement to accelerate and dent the car make my pain insupportable.
I don't believe it is going to get better.
Do you know which test can diagnose for sure these nerves problem? Do you know different treatments rather toses that I already took?
Do you have problems to walk or drive?
Please help me because I have a little girl with 4 thar needs me and I'm not able to haldle daily tasks.
Thanks

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What's your secret to cont. using the pain controlling techniques that Mayo taught you? My life gets crazy (just like everyone's else) w/ family, activities & part-time work. Please share how you incorporate breathing, relaxation ,distraction, ect. into your daily life. I forget about myself & put them 1st, along w/ many other things that go on in life. I find myself not taking the time to care for me! Although, that's my own fault:/ I have an awesome family & group of friends that keep me sane every day, haha

REPLY
@fmassad

Hi I'm from Brazil and I have pain in my rgith groin and right pubc area and it started just after a laparoscopy for severe endometriosis. My pain started 3 years ago but it is getting worse.
I went into many doctors and some of them have told me that it proably is some damage in ilioinguinal nerve and hypogastric nerve.
My pain stars into my abdome and goes down to my pubs and my leg.
They tried to block these nerves which provide some temporary relief to my pain in first, second and third tried but in my fourth try it didn't work and my pain got worse.
I'm now doing a treatment in the best brazilian public hospital - Hospital das Clinicas.
i'm taking tramadol every 6 hours and Lyrica twice a day but this is not able to stop my pain. i'm also doing physiotherapy( trigger point massage) which provides me some relief.
This pain has changed my life because of this I'm using a walking stick, I can't drive because the movement to accelerate and dent the car make my pain insupportable.
I don't believe it is going to get better.
Do you know which test can diagnose for sure these nerves problem? Do you know different treatments rather toses that I already took?
Do you have problems to walk or drive?
Please help me because I have a little girl with 4 thar needs me and I'm not able to haldle daily tasks.
Thanks

Jump to this post

Hi Keri. We were taught cognitive behavioral therapy at the Mayo pain program. Your thoughts, feelings and behaviors are all connected. One affecting each other. How you think can cause different emotional reactions, physical reactions and behaviors. A saying I remember form the program: "I am driving the car, not pain. Pain is just a passenger." Check out the program. I found it very valuable. Tom

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@fmassad

Hi I'm from Brazil and I have pain in my rgith groin and right pubc area and it started just after a laparoscopy for severe endometriosis. My pain started 3 years ago but it is getting worse.
I went into many doctors and some of them have told me that it proably is some damage in ilioinguinal nerve and hypogastric nerve.
My pain stars into my abdome and goes down to my pubs and my leg.
They tried to block these nerves which provide some temporary relief to my pain in first, second and third tried but in my fourth try it didn't work and my pain got worse.
I'm now doing a treatment in the best brazilian public hospital - Hospital das Clinicas.
i'm taking tramadol every 6 hours and Lyrica twice a day but this is not able to stop my pain. i'm also doing physiotherapy( trigger point massage) which provides me some relief.
This pain has changed my life because of this I'm using a walking stick, I can't drive because the movement to accelerate and dent the car make my pain insupportable.
I don't believe it is going to get better.
Do you know which test can diagnose for sure these nerves problem? Do you know different treatments rather toses that I already took?
Do you have problems to walk or drive?
Please help me because I have a little girl with 4 thar needs me and I'm not able to haldle daily tasks.
Thanks

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So,the pudendal blocks did nothing but make your symptoms worse? Sorry, but how long have you had this problem? I'm going on year 2 and am thinking of having the nerve blocks but have huge concerns. I cannot imagine things getting worse. Opinion? How are you feeling now? Take care

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@fmassad

Hi I'm from Brazil and I have pain in my rgith groin and right pubc area and it started just after a laparoscopy for severe endometriosis. My pain started 3 years ago but it is getting worse.
I went into many doctors and some of them have told me that it proably is some damage in ilioinguinal nerve and hypogastric nerve.
My pain stars into my abdome and goes down to my pubs and my leg.
They tried to block these nerves which provide some temporary relief to my pain in first, second and third tried but in my fourth try it didn't work and my pain got worse.
I'm now doing a treatment in the best brazilian public hospital - Hospital das Clinicas.
i'm taking tramadol every 6 hours and Lyrica twice a day but this is not able to stop my pain. i'm also doing physiotherapy( trigger point massage) which provides me some relief.
This pain has changed my life because of this I'm using a walking stick, I can't drive because the movement to accelerate and dent the car make my pain insupportable.
I don't believe it is going to get better.
Do you know which test can diagnose for sure these nerves problem? Do you know different treatments rather toses that I already took?
Do you have problems to walk or drive?
Please help me because I have a little girl with 4 thar needs me and I'm not able to haldle daily tasks.
Thanks

Jump to this post

I have had chronic rt sided pubic bone, groin, inner thigh to knee, & rectal pain since 2009. Dr. Anotlack eval. me & he ran a series of tests on me including test on my pudendal nerves. These tests showed damaged to them. So logically we both thought by doin these pudendal inj my pain would either go away or lessen.
But to get back to your question all 5 CT guided pudendal blocks did absolutely nothing for my pain, except worsen it, which I didn't think my pain could get much worse! Guess I was wrong!!!!! The Doc thinks 2 reasons why this happened- even though I have pudendal neuralgia-
1st my pudendal nerves are not my primary source of my pain, (like we both thought) it's another branch of nerves, but which nerve(s).So Dr. Antolack referred me to Dr. Richard Marvel in Annapolis, Maryland in June for yet, another opinion, I'll have to stay there for 5 days in order to be thoroughly eval & treated (no surgery is planned that visit, just an MRN, series of tests
& injections)
2nd since my pain has been so intense for so long my body is developing central nerve sensitization or "spinal cord wind-up" UGG

TE please give me more info on your pudendal pain & what treatments you have did & what types of docs you have saw. There are very few docs that want to deal with this type of condition. I live in ND & there is absolutely no doc close, which stinks cuz air fair is outrageous expensive.

Can't wait to hear back from you,
Keri

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@fmassad

Hi I'm from Brazil and I have pain in my rgith groin and right pubc area and it started just after a laparoscopy for severe endometriosis. My pain started 3 years ago but it is getting worse.
I went into many doctors and some of them have told me that it proably is some damage in ilioinguinal nerve and hypogastric nerve.
My pain stars into my abdome and goes down to my pubs and my leg.
They tried to block these nerves which provide some temporary relief to my pain in first, second and third tried but in my fourth try it didn't work and my pain got worse.
I'm now doing a treatment in the best brazilian public hospital - Hospital das Clinicas.
i'm taking tramadol every 6 hours and Lyrica twice a day but this is not able to stop my pain. i'm also doing physiotherapy( trigger point massage) which provides me some relief.
This pain has changed my life because of this I'm using a walking stick, I can't drive because the movement to accelerate and dent the car make my pain insupportable.
I don't believe it is going to get better.
Do you know which test can diagnose for sure these nerves problem? Do you know different treatments rather toses that I already took?
Do you have problems to walk or drive?
Please help me because I have a little girl with 4 thar needs me and I'm not able to haldle daily tasks.
Thanks

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Hi Keri,
It is Fabiana from Brazil.
As I told you in other post, my pain also got worse last time I block my nerves.
Honestly, I don't believe in this kind of treatment.
You said " 2nd since my pain has been so intense for so long my body is developing central nerve sensitization or "spinal cord wind-up" UGG"
My doctor said the same thing to me. If this is your case, what does your doc suggested as treatment?
I'm so tired about my pain and I agree with you when you say that the doctors are not interested in treat our problem. I'm glad that I found dr Rogerio Adas and he is helping me on this fight.
I hope we can find a solution for our problem (ASAP).
Fabiana

REPLY
@fmassad

Hi I'm from Brazil and I have pain in my rgith groin and right pubc area and it started just after a laparoscopy for severe endometriosis. My pain started 3 years ago but it is getting worse.
I went into many doctors and some of them have told me that it proably is some damage in ilioinguinal nerve and hypogastric nerve.
My pain stars into my abdome and goes down to my pubs and my leg.
They tried to block these nerves which provide some temporary relief to my pain in first, second and third tried but in my fourth try it didn't work and my pain got worse.
I'm now doing a treatment in the best brazilian public hospital - Hospital das Clinicas.
i'm taking tramadol every 6 hours and Lyrica twice a day but this is not able to stop my pain. i'm also doing physiotherapy( trigger point massage) which provides me some relief.
This pain has changed my life because of this I'm using a walking stick, I can't drive because the movement to accelerate and dent the car make my pain insupportable.
I don't believe it is going to get better.
Do you know which test can diagnose for sure these nerves problem? Do you know different treatments rather toses that I already took?
Do you have problems to walk or drive?
Please help me because I have a little girl with 4 thar needs me and I'm not able to haldle daily tasks.
Thanks

Jump to this post

I've never heard of spinal cord wind up? That terrifies me. So would anyone recommend a pudendal nerve block? The doctors seem to be so flip about them. If you want one then have one they say. If there are so many negatives involved why wouldn't they be more cautious in their recommendations. There have to be people out there with positive results? I'm really torn on having one. If a person waits too long to try it then the spinal cord wind up comes into play but if you don't have one you don't give the nerve the opportunity to have the steroid possibly heal that nerve? Any advice?

REPLY
@fmassad

Hi I'm from Brazil and I have pain in my rgith groin and right pubc area and it started just after a laparoscopy for severe endometriosis. My pain started 3 years ago but it is getting worse.
I went into many doctors and some of them have told me that it proably is some damage in ilioinguinal nerve and hypogastric nerve.
My pain stars into my abdome and goes down to my pubs and my leg.
They tried to block these nerves which provide some temporary relief to my pain in first, second and third tried but in my fourth try it didn't work and my pain got worse.
I'm now doing a treatment in the best brazilian public hospital - Hospital das Clinicas.
i'm taking tramadol every 6 hours and Lyrica twice a day but this is not able to stop my pain. i'm also doing physiotherapy( trigger point massage) which provides me some relief.
This pain has changed my life because of this I'm using a walking stick, I can't drive because the movement to accelerate and dent the car make my pain insupportable.
I don't believe it is going to get better.
Do you know which test can diagnose for sure these nerves problem? Do you know different treatments rather toses that I already took?
Do you have problems to walk or drive?
Please help me because I have a little girl with 4 thar needs me and I'm not able to haldle daily tasks.
Thanks

Jump to this post

Thanks for getting back to. This started about 2 years ago. During my walking exercising I would notice a pain in my pubic area. I am prone to yeast infections so thought I was getting one. Tests came back negative numerous times. Mt obeying referred me to a pain management dr that told me I have pelvic wall dysfunction. I did pt for at least 6 months then turned to acupunture. The acupuncture seemed to help somewhat when I asked her to start treating me like I had pudendal nerve issues not pelvic wall dysfunction. Then I started considering nerve block. Went for a consult and they acted like it would be no problem. If u want one have one. Never did they say it could get worse nor did they mention anything negative about it. Of course I read online the negatives but I'm exhausted from seeing so many doctors I feel like I cannot describe my symptoms anymore or I'll throw up . I have a lot of butt pain, burning in my vulva uthera and up my butt crack, inner and outer thigh. When I read other peoples posts I wonder do i really have pudendal problems because I can work , rarely sit down at work, but I can function. Is this going to get worse as time goes on?
I live in Wisconsin about 30 minutes from the Minnesota border. Any suggestions you have would be appreciated. I want to try the block but am scared to death. Like I said I can function now and can do things with my family. I have no bathroom issues at all. Will a block bring that on or do I not have pudendal problems.
Thanks again for replying and listening
The

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@fmassad

Hi I'm from Brazil and I have pain in my rgith groin and right pubc area and it started just after a laparoscopy for severe endometriosis. My pain started 3 years ago but it is getting worse.
I went into many doctors and some of them have told me that it proably is some damage in ilioinguinal nerve and hypogastric nerve.
My pain stars into my abdome and goes down to my pubs and my leg.
They tried to block these nerves which provide some temporary relief to my pain in first, second and third tried but in my fourth try it didn't work and my pain got worse.
I'm now doing a treatment in the best brazilian public hospital - Hospital das Clinicas.
i'm taking tramadol every 6 hours and Lyrica twice a day but this is not able to stop my pain. i'm also doing physiotherapy( trigger point massage) which provides me some relief.
This pain has changed my life because of this I'm using a walking stick, I can't drive because the movement to accelerate and dent the car make my pain insupportable.
I don't believe it is going to get better.
Do you know which test can diagnose for sure these nerves problem? Do you know different treatments rather toses that I already took?
Do you have problems to walk or drive?
Please help me because I have a little girl with 4 thar needs me and I'm not able to haldle daily tasks.
Thanks

Jump to this post

TE
It's hard for me to recommends pudendal blocks since they made me miserable but you say you can still function & work so if your ok w/ the level of your pain & what u can do then I wouldn't mess with it. Are you taking any prescription meds for nerve pain.?I'm not talking about pain meds. I'm asking more like anti neuroleptic drugs or antidepressant ,ect? If not I would give these a try 1st. Please u tube Dr Stanley Antolak & watch his video on describing pudendal neuritis. I'm so glad I did see him & go through the series of injections. My pain is an 8 most weeks. It used to average 3-5 weekly but not anymore,so I'm willing to try most therapies. I'll let you know how my appt goes in Maryland w/ Dr Marvel in June. He talked to me on the phone for an hour & reassures me that there is a high resolution MRI called MRN that he will run, & perform different types of injections.
Ones I've
never tried yet. YES I'm SCARED for this appt but I just want some relief:)
Keep in touch!

REPLY
@fmassad

Hi I'm from Brazil and I have pain in my rgith groin and right pubc area and it started just after a laparoscopy for severe endometriosis. My pain started 3 years ago but it is getting worse.
I went into many doctors and some of them have told me that it proably is some damage in ilioinguinal nerve and hypogastric nerve.
My pain stars into my abdome and goes down to my pubs and my leg.
They tried to block these nerves which provide some temporary relief to my pain in first, second and third tried but in my fourth try it didn't work and my pain got worse.
I'm now doing a treatment in the best brazilian public hospital - Hospital das Clinicas.
i'm taking tramadol every 6 hours and Lyrica twice a day but this is not able to stop my pain. i'm also doing physiotherapy( trigger point massage) which provides me some relief.
This pain has changed my life because of this I'm using a walking stick, I can't drive because the movement to accelerate and dent the car make my pain insupportable.
I don't believe it is going to get better.
Do you know which test can diagnose for sure these nerves problem? Do you know different treatments rather toses that I already took?
Do you have problems to walk or drive?
Please help me because I have a little girl with 4 thar needs me and I'm not able to haldle daily tasks.
Thanks

Jump to this post

I have not asked what to do bout central sentitzation yet. I've heard of Ketamine injections. Google that to see if that's something worth looking into. What treatment has your doc recommended for over sensitivity? Once I have my appt Maryland I'm hoping that he is able to block some different nerve pathways to lessen this spinal cord wind up. When I asked him about it he says he sees it all the time in his pt w/ prolonged neuritis. He mentioned if you can find the right pathways to block then it should help. He was extremely knowledgeable about the female pelvis & all the nerves.
My fingers are criss- crossed, even my toes are, haha, that he can help me.

REPLY
@fmassad

Hi I'm from Brazil and I have pain in my rgith groin and right pubc area and it started just after a laparoscopy for severe endometriosis. My pain started 3 years ago but it is getting worse.
I went into many doctors and some of them have told me that it proably is some damage in ilioinguinal nerve and hypogastric nerve.
My pain stars into my abdome and goes down to my pubs and my leg.
They tried to block these nerves which provide some temporary relief to my pain in first, second and third tried but in my fourth try it didn't work and my pain got worse.
I'm now doing a treatment in the best brazilian public hospital - Hospital das Clinicas.
i'm taking tramadol every 6 hours and Lyrica twice a day but this is not able to stop my pain. i'm also doing physiotherapy( trigger point massage) which provides me some relief.
This pain has changed my life because of this I'm using a walking stick, I can't drive because the movement to accelerate and dent the car make my pain insupportable.
I don't believe it is going to get better.
Do you know which test can diagnose for sure these nerves problem? Do you know different treatments rather toses that I already took?
Do you have problems to walk or drive?
Please help me because I have a little girl with 4 thar needs me and I'm not able to haldle daily tasks.
Thanks

Jump to this post

I've did try some anti convulsants gabapentin and amitripyline it did not do anything. I have had a few chiropractor Appts focusing in my sacrum and Lower back. Those seem to help with the burning.
I worry that if I don't do the blocks the nerve damage will escalate and then what? I've noticed that when I use prep. H I feel better also but I think there is a small amount of anesthia in there and that's helpful?
My chiro thinks it's the sensory part of my nerve that is irritated/inflamed. How does that ever heal if I don't use steroid injection?
I feel like My symptoms are manageable because I stand 90 percent of my work day.
I am confused and frustrated because I had made up my mind to have the blocks because I felt that would give me the best shot at healing the nerve. I can handle the pain I have now but I can't handle anymore. How long have you been dealing with this and how long after it started did you have your blocks? I'm afraid of making things worse more than anything. Have you had contact with people that have had good results with the blocks.
Thanks again,
Theresa

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