← Return to ureterosigmoidostomy
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Ostomy | Last Active: Nov 27, 2019 | Replies (29)
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Replies to "my daughter was born w/ bladder exstrophy. She now has an augmented bladder and caths thru..."
Go to Mayo? Just an additional thought cleanliness to sterile is spectrum. But I betAs good Mom you know that.
I’m so glad such new technology and approaches have been developed so she can be much healthier. I would ask you to remember that it’s not just the bladder affected. The whole perineal area may have alterations: seperation of pubic bones, outward rotation of hips, smaller vagina/uterus. The stoma I presume you are working with WOC nurses (wound,ostomy,continence) RNs . Mayo has a whole department of Stoma therapy. Those nurses are the best problem solvers , esp. since they deal with SO many stoma issues. I see them annually when go to Rochester. I thank God she can benefit from newer responses to BE. My MD told me they still do what I had ureterosigmoidostomy for third world countries, because they don’t have stoma equipment available. Thanks for good wishes; I always feel encouraged by them.