Dx DMS IN 1998. Re prednisone 2 years, then methotrexate for 4 years. Have been in remission, sort of, since 2004. Just diagnosed with interstitial lung disease and doc wants to put me on cellcept, but no go per Blue Shield. How do others get this okayed by insurance? Or is it because I'm on Medicare and "FDA has not approved its use for this disease"? Praying for miracles to happen here!
Hi, <br />
I'm on cellcept and on Medicare they do cover this drug but your doctor may have to write them a note. <br />
So sorry you have this disease, I'm on my 13 year with it and ILD. Went to the Myosistis Association conference last year, it is in Florida this year but if you can go, they have doctors there and so many classes with so much info. Check them out on line. <br />
Will pray for you<br />
<br />
I was diagnosed with Dermatomyositis with MDA5 antigens and ILD in February 2021. My doctors wanted to put me on Cellcept, which my insurance denied, my Rheumatologist appealed it three times, with no luck. I am now on Azathioprine to treat my ILD, I would prefer Cellcept, does anyone know if there is anything I can do to get Cellcept? Currently I have rheumatologist and pulmonologist specialist doctors, I also went to Mayo Clinic in Rochester Minnesota in September of this year for second opinion on my treatment options. Mayo confirmed my diagnosis, and were in agreement with my doctors on my treatment plan. My current treatment plan is to continue on Azathioprine, have PFT every three months, and if ILD Progresses, they want me to start IV Infusion of Rituximab, which terrifies me. I would rather get Cellcept if possible.
Thank You,
Kathryn
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1 ReactionI was diagnosed with Dermatomyositis with MDA5 antigens and ILD in February 2021. My doctors wanted to put me on Cellcept, which my insurance denied, my Rheumatologist appealed it three times, with no luck. I am now on Azathioprine to treat my ILD, I would prefer Cellcept, does anyone know if there is anything I can do to get Cellcept? Currently I have rheumatologist and pulmonologist specialist doctors, I also went to Mayo Clinic in Rochester Minnesota in September of this year for second opinion on my treatment options. Mayo confirmed my diagnosis, and were in agreement with my doctors on my treatment plan. My current treatment plan is to continue on Azathioprine, have PFT every three months, and if ILD Progresses, they want me to start IV Infusion of Rituximab, which terrifies me. I would rather get Cellcept if possible.
Thank You,
Kathryn
Hello,
I was recently diagnosed with anti-MDA5 dermatomyositis. I'm interested in connecting with other patients that have the same condition. Thanks.