I have been recently diagnosed with DMS, with Interstitial Lung Disease, and COPD with emphasema (sp?). My diagnosis came last April after being symptomatic since 2006. Mine started from what I can tell alot differently than others. Mine started with 3 episodes of Bell’s Palsy, brain and lung infiltrates. They had misdiagnosed it as sarcoidosis, neurosarcoidosis and Lupus. I still don’t know if they even have it right. I have been to 4 states worth of specialtists, including the Mayo in Rochester, before coming to TX and getting the diagnosis through a thigh biopsy and a lung biopsy. The Mayo clinic had actually told me that this was all in my head!! And that I was just sleep deprived, had Sleep Apnea and was depressed. I still have not had a stable lab work set up since diagnosis, so frustrating and hurting so bad in the mean time! I don’t know much about DMS than what I read online, which isn’t much. So I am hoping to hear feedback from people that are going through the exact same thing! Anything helps!