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<p>I have Spasmodic Dysphonia of the Vocal Cords and have injections every 4 months to give me a voice.<br /> Looking for someone in the area Brunswick,Ga is where I live. I need to find a Dr. in Jacksonville area<br /> if possible. that gives vocal cord injections.Would like to know if Mayo clinic perhaps has ENT drs. in<br /> this Dysphonia. Would also love to hear from anyone who has this vocal cord disorder. Thanks.</p>
Replies to "I have Spasmodic Dysphonia of the Vocal Cords and have injections every 4 months to give..."
Hi, Thank You for your e-mail regarding spasmodic dysphonia. I had been seeing a Dr.Johns at Emory Clinic, but he has moved to California. Haven't had vocal cord <br>injections for almost two years. It was so inconvenient going to Atlanta for those injections. Anyway, do not have much voice without a Dr. available.My Dysphonia started in 1996 and took me over a year and 3 ENT's and with the help of my computer to discover what was wrong with my voice. Dr.Jennifer Andrus who was in Savannah at that time diagnosed and treated me with good injections that gave me good three months of speaking voice, she moved and Dr.Daniels in the same office, who had treated me for a year,saying it was acid reflux, took over her practice, his injections were not very dependable. Dr.Johns was recommended by my Internal Med Dr. his injections were great, had a good speaking voice for 3 -4 mo. It is difficult not being able to speak on the phone and visit with friends and family. Would like to hear from other people who have this. Thank You and let me know any info you can give me. <br>Jan
I'm sorry to hear you've had so much trouble finding a permanent provider. Here is the information about the Meeting of the Jacksonville, FL Spasmodic Dysphonia Support Group Meeting.
Please join us for a meeting of the Jacksonville, FL Spasmodic Dysphonia Support Group Meeting on Saturday, September 10th!
NSDA support groups provide a comfortable place to talk. You will hear how people cope, gain new information, and establish contacts. The benefits include a feeling of 'belonging' to a unique group, the opportunity to share experiences of living with SD, and above all, the realization that you "are not alone" in dealing with this disorder.
Discussions can be informative for the newly diagnosed as well as those who have been dealing with SD for a long time. Family members and friends are welcome and can provide a different perspective.
Whether you're a regular, occasional or a first-time attendee, we hope you'll find the time to join us. There is no charge to attend.
When: Saturday, September 10th
Where: Mandarin Library
3330 Kori Road
Jacksonville, FL
Time: 10:00 - Noon
RSVP to Lisa Milligan at lisasmilligan@yahoo.com
I have dysphonia and dysfagia as a consecuence of a skull base paraganglioma removal in Mayo Clinic in Jacksonville and I am being treated by Dr Amy Rutt there. So far she has put a restylane inyection that didnt do much for me and 3 weeks ago I had a surgery in where she took out fat from my stomach and inyected it in my vocal chord, that has worked wonderful. Still not 100% recovered but I would say 70%. The following step would be a reconstruction of the vocal chord but lets see how things go with my speech therapy. Hope this helps
Connect
Hi @seaside162. I was searching this site for Spasmodic Dysphonia and came across your post. Connect has changed a lot since you wrote it in 2011, and I was wondering if you ever found help? I actually live in Brunswick and work at Mayo Clinic in Jacksonville, FL. There is a Spasmodic Dysphonia Support Group meeting in Jacksonville on September 10, 2016.