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vascular pituitary tumor (non-secreting)

Brain Tumor | Last Active: May 2, 2015 | Replies (7)

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@modernhera

Have you been to mayo yet? I too had recently discovered a very large pituitary macroadenoma secreting an exremely high amount of gh and was diagnosed with acromegaly. The tumor was pushing on my optic chiasm as well as wrapped around one of my caratiod arteries. At mayo they werent sure they got it all either but at least did the transsephenoidal surgery and said in 3 months after another mri may need to do their radiation therapy done in one setting. My vision was immediately better post surgery last week fyi!! I hope this helps in some way as i found the doctors at mayo to truly be putting me in the best hands.

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Replies to "Have you been to mayo yet? I too had recently discovered a very large pituitary macroadenoma..."

We were able to meet with a couple of great physicians at Mayo. They would not recommend surgery either so my husband just had his first week of radiation. That will not bring any immediate relief to him and we are praying it works. We are also using an essential oil called Frankincense.
I'm glad you were able to get your vision back! Hope your still doing well