I have been on the treatment 4 different times. just finished year treatment as maintenace doe half of normal. went off medicine month ago still have very low white count and platletts. have geno type 1 and respond on treatment just so many side effects
i have hep c and just found out april 1,this year i now have liver cirrhosis and am suppose to start hep c treatment .just wondering if there is anyone in a similar situation of being treated for hep c after finding out they have cirrhosis?
hello i also have genotype 1 i also have hiv an cirrious i only had minor side effects from the treatment that i know about it was a long 48 weeks but in my situation i had to go for it an pray it works wwish you the best
did u do the intravenous vit c therapy???? i also thought of doing that but got side tracked w/systemic candida and then my allergist rec alpha lipoic acid intrav which i did twice, not see anything and pay out of pocket so havent proceeded, have been taking standard process supplements to help thyroid and adrenal and stomach function but need to get back to my liver in a more direct way. Last viral load was much increased. are you familiar with lloyd wright triumph over hep c?
I found out I have hep c Oct of 09, they wanted me to start treatment in the spring of 2010. I put it off because my son was getting married in September and I didn't want to be sick. I plan on starting in the spring, the doctor said no winter treatment due to depression. I also have cirrhosis with what they say is quite a bit of damage. Your replies have been very helpful.
Rocco, I'm starting my first week on Hep C treatments: incivik, ribivirin, pegasys. Aside from getting used to the daily routine, not unduly bad. Although I do have skin rash already. Have you begun treatment?
What kind of doctor is a liver doc. I go to a infectious disease doctor but don' t really like him. He says I'm at stage 4 cirrhosis. I'm starting to have some pain and bloating. What about the meds for hep B he says I have to do that has anyone else? Is everyone on here being treated at Mayo?
I found out I have hep c Oct of 09, they wanted me to start treatment in the spring of 2010. I put it off because my son was getting married in September and I didn't want to be sick. I plan on starting in the spring, the doctor said no winter treatment due to depression. I also have cirrhosis with what they say is quite a bit of damage. Your replies have been very helpful.
I have not started anything yet just all the tests. I am at stage 4 Cirrhosis and starting to feel pain and bloating. I am also genotype 1 Hep C. I need a doctor I don't care for the infectious disease doctor I've been to. Considering the Mayo Clinic although it is a 12 hr drive from my home.
I found out I have hep c Oct of 09, they wanted me to start treatment in the spring of 2010. I put it off because my son was getting married in September and I didn't want to be sick. I plan on starting in the spring, the doctor said no winter treatment due to depression. I also have cirrhosis with what they say is quite a bit of damage. Your replies have been very helpful.
I found out I have hep c Oct of 09, they wanted me to start treatment in the spring of 2010. I put it off because my son was getting married in September and I didn't want to be sick. I plan on starting in the spring, the doctor said no winter treatment due to depression. I also have cirrhosis with what they say is quite a bit of damage. Your replies have been very helpful.
I found out I have hep c Oct of 09, they wanted me to start treatment in the spring of 2010. I put it off because my son was getting married in September and I didn't want to be sick. I plan on starting in the spring, the doctor said no winter treatment due to depression. I also have cirrhosis with what they say is quite a bit of damage. Your replies have been very helpful.
Nancy, if they did a liver biopsy you should know your degree of damage. If they have not yet done that Mayo will probably do one and they will want to determine your Meld score, but of course it will vary from person to person. I had periodic tests from my gastroenterologist; MRI, endoscopes, ultrasounds, blood work. Mayo will do their own. We only lived a little under two hours away, so we went back and forth. The liver transplant team should be able to tell you at least part of what to expect and how long to plan on being there. You get in the transplant system and you are moved up as your disease progresses. Mayo will probably want you to have blood tests done on a regular basis when you get home. l think that Dr. Michael Charlton was the first person we meet with. It is hard to remember the exact order of everything. Dr. Charlton is the medical director. I was in and out of Mayo (hospitalized) so much that some things just blend together. They are the best in the business and will work solidly to help you. I hope things get better for you. Write me anytime. Karen
I found out I have hep c Oct of 09, they wanted me to start treatment in the spring of 2010. I put it off because my son was getting married in September and I didn't want to be sick. I plan on starting in the spring, the doctor said no winter treatment due to depression. I also have cirrhosis with what they say is quite a bit of damage. Your replies have been very helpful.
I should of said that as your meld score gets higher you get closer to a transplant. Mine was not high enough when I initially went to Mayo, but over the years it went up. I was already end stage in 1997.
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it is the HCV viral count. What would you like to know??
Rocco did u start treatment yet? I believe stage 4 is cirrhosis, 5 end stage
did u do the intravenous vit c therapy???? i also thought of doing that but got side tracked w/systemic candida and then my allergist rec alpha lipoic acid intrav which i did twice, not see anything and pay out of pocket so havent proceeded, have been taking standard process supplements to help thyroid and adrenal and stomach function but need to get back to my liver in a more direct way. Last viral load was much increased. are you familiar with lloyd wright triumph over hep c?
have u started and what protocol r u following?
What kind of doctor is a liver doc. I go to a infectious disease doctor but don' t really like him. He says I'm at stage 4 cirrhosis. I'm starting to have some pain and bloating. What about the meds for hep B he says I have to do that has anyone else? Is everyone on here being treated at Mayo?
I have not started anything yet just all the tests. I am at stage 4 Cirrhosis and starting to feel pain and bloating. I am also genotype 1 Hep C. I need a doctor I don't care for the infectious disease doctor I've been to. Considering the Mayo Clinic although it is a 12 hr drive from my home.
Nancy, go to the Mayo clinic! Their diligence and superb skill saved my life.
Karen thank you for replying I know your right I'll be calling soon. Is it correct that the first visit they request you be in the area for a week.
Nancy, if they did a liver biopsy you should know your degree of damage. If they have not yet done that Mayo will probably do one and they will want to determine your Meld score, but of course it will vary from person to person. I had periodic tests from my gastroenterologist; MRI, endoscopes, ultrasounds, blood work. Mayo will do their own. We only lived a little under two hours away, so we went back and forth. The liver transplant team should be able to tell you at least part of what to expect and how long to plan on being there. You get in the transplant system and you are moved up as your disease progresses. Mayo will probably want you to have blood tests done on a regular basis when you get home. l think that Dr. Michael Charlton was the first person we meet with. It is hard to remember the exact order of everything. Dr. Charlton is the medical director. I was in and out of Mayo (hospitalized) so much that some things just blend together. They are the best in the business and will work solidly to help you. I hope things get better for you. Write me anytime. Karen
I should of said that as your meld score gets higher you get closer to a transplant. Mine was not high enough when I initially went to Mayo, but over the years it went up. I was already end stage in 1997.