Pancreas and Kidney transplant - share experiences

Posted by charba1 @charba1, Jul 23, 2011

Does anyone know 

Interested in more discussions like this? Go to the Transplants Support Group.

Hi @bszychow @sandras @sophiadelgado,
It's been a while since we've heard from you, so I thought I would check in. Sophia and Bob, would love to get an update. Is the waiting over?
Sandra, how are you doing?

REPLY
@colleenyoung

Hi @bszychow @sandras @sophiadelgado,
It's been a while since we've heard from you, so I thought I would check in. Sophia and Bob, would love to get an update. Is the waiting over?
Sandra, how are you doing?

Jump to this post

Well about a year ago I lost my job and medical insurance so I was placed<br>on hold for transplant. I was then referred to the university of Washington<br>for Transplant since this is in my region. I have been on hold ever since<br>fighting back and forth with medical insurance I'm to the point now where I<br>try not to think about Transplant sounds two stressful and everyday life<br>has its own issues to deal with. But since chosen to not worry so much<br>about and just living life my kidney function has gone up to 26 percent so<br>who knows I might not even need one when it's all said and done I'm just<br>trying to enjoy everything and not street so much. I wish the best of luck<br>to everyone dealing with kidney issues. PRAY FIRST<br><br>

REPLY
@colleenyoung

Hi @bszychow @sandras @sophiadelgado,
It's been a while since we've heard from you, so I thought I would check in. Sophia and Bob, would love to get an update. Is the waiting over?
Sandra, how are you doing?

Jump to this post

So good to hear from you @sophiadelgado. Sorry that the news isn't better re your transplant wait. But I have to congratulate you on your attitude. Wow! Mind over matter and increasing your liver function. Well done.

@bszychow and @rosemarya will you join me in welcoming Sophia back?

REPLY
@colleenyoung

Hi @bszychow @sandras @sophiadelgado,
It's been a while since we've heard from you, so I thought I would check in. Sophia and Bob, would love to get an update. Is the waiting over?
Sandra, how are you doing?

Jump to this post

welcome back.<br><br>Glad to know there is some good news in all that mess. I have been through so many jobs and in and out of insurance. one thing I did find was biofeedback in witch I can control some of my body through my mind. no joke it works. now on the list for a year, still waiting. Hope more things start going better for you. keep that positive attitude, it is a big help. Your in my thoughts.<br><br>

REPLY
@colleenyoung

Hi @bszychow @sandras @sophiadelgado,
It's been a while since we've heard from you, so I thought I would check in. Sophia and Bob, would love to get an update. Is the waiting over?
Sandra, how are you doing?

Jump to this post

@sophiadelgado, In 2014, I replied to you that I "admired your positive attitude". That statement goes double, and even triple today as I am reading your post. I am sorry that you have been facing so many detours of the medical insurance system. It is remarkable that in the midst of this mess, that you have been able to focus on living life, and that your kidney function has actually gone up! Are you on dialysis? My experience was pretty much an emergency event, so I do not have any background in what %function makes dialysis necessary. I want you to know you will be in my prayers. Rosemary

REPLY
@colleenyoung

Hi @bszychow @sandras @sophiadelgado,
It's been a while since we've heard from you, so I thought I would check in. Sophia and Bob, would love to get an update. Is the waiting over?
Sandra, how are you doing?

Jump to this post

@bszychow , time does pass slowly while waiting. And, as if waiting alone is not difficult enough, it sounds like you have endured more than your share of trouble. It also sounds like you have a positive and optimistic outlook. That will help carry you forward. I am happy for you that the biofeedback has been working for you. Our minds and our bodies are capable of amazing accomplishments! Would you be comfortable to share a little about how you used biofeedback? Rosemary

REPLY

My husband had a kidney and pancreas transplant at Mayo in 1993. He had a second kidney transplant in 2003 but the original pancreas transplant is still functioning. All his transplant numbers look good. Wondering if there are other transplants this far out from Mayo and would like to compare notes. Feeling blessed but support could help.

REPLY
@colleenyoung

Hi @bszychow @sandras @sophiadelgado,
It's been a while since we've heard from you, so I thought I would check in. Sophia and Bob, would love to get an update. Is the waiting over?
Sandra, how are you doing?

Jump to this post

---------- Forwarded message ---------

REPLY
@colleenyoung

Hi @bszychow @sandras @sophiadelgado,
It's been a while since we've heard from you, so I thought I would check in. Sophia and Bob, would love to get an update. Is the waiting over?
Sandra, how are you doing?

Jump to this post

Hi Sophia - it looks like you tired to post a message in response to Rosemary, but it is blank. Can you please try again?
So glad to hear from you again!

REPLY
@ters1993

My husband had a kidney and pancreas transplant at Mayo in 1993. He had a second kidney transplant in 2003 but the original pancreas transplant is still functioning. All his transplant numbers look good. Wondering if there are other transplants this far out from Mayo and would like to compare notes. Feeling blessed but support could help.

Jump to this post

Hi @ters1993, welcome to Connect.
Wow, so great to hear about the longevity of your husband's transplants. We have a few members who are long-time transplant recipients. @rosemarya, I believe you are 7 years and counting, right? @dglass4040 was your transplant 2011?

I'd love to move this conversation to the discussion called Living Life after your Transplant https://connect.mayoclinic.org/discussion/living-life-after-your-transplant/ Will you join me there?

REPLY
Please sign in or register to post a reply.