Pancreas and Kidney transplant - share experiences

Posted by charba1 @charba1, Jul 23, 2011

Does anyone know 

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Welcome back @sophiadelgado. How frustrating (not sure which adjective to use here) it must be to wait so long. Did you see this post about getting on multiple transplant lists?

@sandras How long did you have to wait?

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I had to wait 1 year to the date.

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What that year must've been like @sandras. I cannot imagine. But I bet you can imagine how @sophiadelgado must feel. She's been waiting over a year now.

Sophia, I forgot to add the link to the message with information about being on multiple lists. Here you go: https://connect.mayoclinic.org/discussion/i-have-been-added-to-the-transplant-list-for-a-liver-at/

Sandras, how long ago did you have your transplant and how is the recovery going? How are you doing today?

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Hi All, I have only been on the list since 9-11-2015. Got my first call in less than 2 months, but died waiting on a plain. 2 other calls with an EBV Pos. but I am EBV Neg. I am slowly going crazy. I don't know what a year or more would be like?

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@bszychow

Hi All, I have only been on the list since 9-11-2015. Got my first call in less than 2 months, but died waiting on a plain. 2 other calls with an EBV Pos. but I am EBV Neg. I am slowly going crazy. I don't know what a year or more would be like?

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For a pancrease transplant? Are you a diebettic type 1?<br />

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@bszychow

Hi All, I have only been on the list since 9-11-2015. Got my first call in less than 2 months, but died waiting on a plain. 2 other calls with an EBV Pos. but I am EBV Neg. I am slowly going crazy. I don't know what a year or more would be like?

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You said "but died being on a plain". What do that mean?

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@colleenyoung

What that year must've been like @sandras. I cannot imagine. But I bet you can imagine how @sophiadelgado must feel. She's been waiting over a year now.

Sophia, I forgot to add the link to the message with information about being on multiple lists. Here you go: https://connect.mayoclinic.org/discussion/i-have-been-added-to-the-transplant-list-for-a-liver-at/

Sandras, how long ago did you have your transplant and how is the recovery going? How are you doing today?

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I had my transplant Dec 21, 2013 afer a long long road to recover (i regected 2 times and had many complications) I am now now longer diebattic,free of insuline. It is a miracle that i made it! But i feel so very grateful especially to my doner and his family for giving me a second chance! God bless!

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@bszychow

Hi All, I have only been on the list since 9-11-2015. Got my first call in less than 2 months, but died waiting on a plain. 2 other calls with an EBV Pos. but I am EBV Neg. I am slowly going crazy. I don't know what a year or more would be like?

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Yes I am type 1 for 40 years, and the pancreas was on a commercial flight that got held up some ware.
I was waiting for it being prepped but its usable time had passed and was not there yet. so it was cancelled.

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@bszychow

Hi All, I have only been on the list since 9-11-2015. Got my first call in less than 2 months, but died waiting on a plain. 2 other calls with an EBV Pos. but I am EBV Neg. I am slowly going crazy. I don't know what a year or more would be like?

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Oh so sorry. To. Here. That<br />

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@bszychow

Hi All, I have only been on the list since 9-11-2015. Got my first call in less than 2 months, but died waiting on a plain. 2 other calls with an EBV Pos. but I am EBV Neg. I am slowly going crazy. I don't know what a year or more would be like?

Jump to this post

Hi, I waited for a year and also had many calls. It is frustrating but hang<br />
in there! I personally know what is is like to wait.<br />

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