Colleen Young, Connect Director | @colleenyoung | Jan 29, 2016
Welcome back @sophiadelgado. How frustrating (not sure which adjective to use here) it must be to wait so long. Did you see this post about getting on multiple transplant lists?
Colleen Young, Connect Director | @colleenyoung | Jan 31, 2016
What that year must've been like @sandras. I cannot imagine. But I bet you can imagine how @sophiadelgado must feel. She's been waiting over a year now.
Hi All, I have only been on the list since 9-11-2015. Got my first call in less than 2 months, but died waiting on a plain. 2 other calls with an EBV Pos. but I am EBV Neg. I am slowly going crazy. I don't know what a year or more would be like?
Hi All, I have only been on the list since 9-11-2015. Got my first call in less than 2 months, but died waiting on a plain. 2 other calls with an EBV Pos. but I am EBV Neg. I am slowly going crazy. I don't know what a year or more would be like?
Hi All, I have only been on the list since 9-11-2015. Got my first call in less than 2 months, but died waiting on a plain. 2 other calls with an EBV Pos. but I am EBV Neg. I am slowly going crazy. I don't know what a year or more would be like?
What that year must've been like @sandras. I cannot imagine. But I bet you can imagine how @sophiadelgado must feel. She's been waiting over a year now.
I had my transplant Dec 21, 2013 afer a long long road to recover (i regected 2 times and had many complications) I am now now longer diebattic,free of insuline. It is a miracle that i made it! But i feel so very grateful especially to my doner and his family for giving me a second chance! God bless!
Hi All, I have only been on the list since 9-11-2015. Got my first call in less than 2 months, but died waiting on a plain. 2 other calls with an EBV Pos. but I am EBV Neg. I am slowly going crazy. I don't know what a year or more would be like?
Yes I am type 1 for 40 years, and the pancreas was on a commercial flight that got held up some ware.
I was waiting for it being prepped but its usable time had passed and was not there yet. so it was cancelled.
Hi All, I have only been on the list since 9-11-2015. Got my first call in less than 2 months, but died waiting on a plain. 2 other calls with an EBV Pos. but I am EBV Neg. I am slowly going crazy. I don't know what a year or more would be like?
Hi All, I have only been on the list since 9-11-2015. Got my first call in less than 2 months, but died waiting on a plain. 2 other calls with an EBV Pos. but I am EBV Neg. I am slowly going crazy. I don't know what a year or more would be like?
Welcome back @sophiadelgado. How frustrating (not sure which adjective to use here) it must be to wait so long. Did you see this post about getting on multiple transplant lists?
@sandras How long did you have to wait?
I had to wait 1 year to the date.
What that year must've been like @sandras. I cannot imagine. But I bet you can imagine how @sophiadelgado must feel. She's been waiting over a year now.
Sophia, I forgot to add the link to the message with information about being on multiple lists. Here you go: https://connect.mayoclinic.org/discussion/i-have-been-added-to-the-transplant-list-for-a-liver-at/
Sandras, how long ago did you have your transplant and how is the recovery going? How are you doing today?
Hi All, I have only been on the list since 9-11-2015. Got my first call in less than 2 months, but died waiting on a plain. 2 other calls with an EBV Pos. but I am EBV Neg. I am slowly going crazy. I don't know what a year or more would be like?
For a pancrease transplant? Are you a diebettic type 1?<br />
You said "but died being on a plain". What do that mean?
I had my transplant Dec 21, 2013 afer a long long road to recover (i regected 2 times and had many complications) I am now now longer diebattic,free of insuline. It is a miracle that i made it! But i feel so very grateful especially to my doner and his family for giving me a second chance! God bless!
Yes I am type 1 for 40 years, and the pancreas was on a commercial flight that got held up some ware.
I was waiting for it being prepped but its usable time had passed and was not there yet. so it was cancelled.
Oh so sorry. To. Here. That<br />
Hi, I waited for a year and also had many calls. It is frustrating but hang<br />
in there! I personally know what is is like to wait.<br />