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paarak (@paarak)

Gastroparesis with severe symptoms!

Digestive Health | Last Active: Jun 25 11:08am | Replies (305)

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@bellyacheblues

I’ve just been diagnosed with gastroparesis after having a gastric emptying test. My case is idiopathic in origin, prior to my diagnosis I was on massive amounts of prescription antacids for 4 months. Has this caused my gastroparesis to get worse. I’m scheduled to see a nutritionist in 2 weeks.I am taking erythromycin 250 mg. before each meal , am excercising, but don’t feel much improvement. Does anyone have any advice for me? Shocked with my diagnosis, signed sleepy tummy

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Replies to "I've just been diagnosed with gastroparesis after having a gastric emptying test. My case is idiopathic..."

I’m new here, so bear with me. I too was diagnosed with gastroparesis in 2009 after having a lap band placed and tightened. The lap band was removed, and the daily nausea and vomitting continued. I was then given botox injections, massive doses of anti-nausea meds, feeding tubes, TPN, and even a pace maker for my tummy. Eventually my stomach was removed in May of 2011, it had turned black inside due to the chronic vomitting. Guess what?? I am still sick, vomitting almost everyday, and down to 104lbs from 272lbs. My doctors told me friday there is no more they can do for me. I tell my story to say this, if you take nothing else away from all of this, please, please, please remember, BE YOUR OWN ADVOCATE!!! Make your voice heard, due your research and be dilligent. Keep a food diary, mark what works for you and what doesn’t. I kept telling everyone it just didn’t make sense to me that my stomach was the only culprit. Now I am at a loss and hoping that Mayo can help. As a single parent I struggle everyday to be well enough to just talk to my children to see how their day went. Don’t allow this to happen to you. Make informed decisions, get second, third, and fourth opinions. I wish you all the best! I would love any resourceful information.

Hi I’m 42 years old diagnosed I too suffer from this horrid condition I’m currently laying in a hospital bed in midland Michigan my quality of life isn’t the greatest very weak very sick monthly seems to hit me hard during menstral cycle I live on mostly liquids but on occasion eat what I want if I’m going to vomit anyway I’ve kept food logs. now was everyday for 3 years I was in bed have had Botox and getting it again January 26 I understand your agony your fear. I hope the best for you but I’m at a loss for any new or good info

my daughter Ashley (age 16) had similar issues starting 3+ years ago. She was finally diagnosed with Gastroparesis a year ago. Check out

http://www.g-pact.org

for more information. Also, you can read my daughter’s story at:

http://www.caringbridge.org/visit/AshleyJenkins

Also there is an excellent you tube video created by a young lady with Gastroparesis to raise awareness about this rare disease. You can check it out at-

Hope this helps and that you can get some answers…