← Return to Diagnosed with Cerebral Venous Sinus Thrombosis (CVST)

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@sydrine

Hi to all...i experienced my cvst almost 9 months ago now. It happened the end of June 2018.it started with a thunderclap migraine and a hematologist I was referred to determined it was caused by a protein s deficiency. Had a massive bleed from what doctors said. Just curious as to everyone's current condition. Currently I find myself to be really wimpy for lack of a better way to phrase it and I think it might be because of the blood thinner but not sure.

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Replies to "Hi to all...i experienced my cvst almost 9 months ago now. It happened the end of..."

Hello, I hope you are feeling better. Was it a protein s deficiency by Chance? My name is Megan and my story is be similar thunderclap, lab work determined protein s deficiency all with the CVST of course, I was diagnosed august 2020 so pretty recently. I’m scared and I don’t know what to expect.
Do you have any updates?

Sorry I had to reread this, yes it was a protein s deficiency. I would love to her more about your story if you want to share it.