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JIM D.C. (@jimdc)

Pheochromocytoma & Paraganglioma

Neuroendocrine Tumors (NETs) | Last Active: Mar 7, 2018 | Replies (10)

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@jls77

Hi, My name is Tabatha and my husband was diagnosed with paraganglioma over 6years ago. He is out of treatment options as of now and we’re in hopes that maybe the Mayo Clinic can help. He doesn’t want anymore chemo/poison treatments. Can you please help?

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Replies to "Hi, My name is Tabatha and my husband was diagnosed with paraganglioma over 6years ago. He..."

I hope that you can find some answers at Mayo! I had a great care team there that removed my para December 2016.

Was yours metastasized when you were diagnosed?

No, I am one of the lucky ones that has no signs of mestasis. Mine was removed and they don’t expect any more issues. I know others that have had lots more issues than me, but have still had good routcomes. Are you on Facebook? There is a great group for Paraganglioma and Pheochromocytoma. Lots of good info and support there.

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