Video Q&A and Behind-the-Scenes: Liver Transplant

Tue, Apr 24, 2018
12:00pm to 1:00pm CT

Description

Get a behind-the-scenes look at the procurement process for a liver transplant. After walking you through the process, Dr. Kris Croome, transplant surgeon, along with procurement tech Ana Kester and coordinator Jill Campbell, will answer your questions during the live broadcast.answers questions from the live audience.

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@hadamscheck

How do you know when it is time to get a living donor transplant with PSC? Is it better to get it sooner rather than later? MELD is pretty low, and overall health is good, but if you wait until very sick is that a smart thing to do, rather than when younger and overall healthier?

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@hadamscheck,
I received my transplant from an anonymous deceased donor in 2009. It sounds like you or a loved one are at the beginning of the transplant journey. I invite you to the Transplant Discussion Group where you can talk with others in stages of transplant.

If you want information about Living Donation, go to the PAGES for a Living Donor Toolkit.
https://connect.mayoclinic.org/page/transplant/tab/resource-36/

Rosemary

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@newliver

If I move out of the state where my Mayo clinic was does my transplant team recommend a place for me to get my yearly check ups or does it mean I have to return always to my orginal transplant hospital

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@newliver, I received my transplant at Mayo Rochester in 2009. I live 750 miles away. It is my (and my husband's) preference to return to Rochester annually. I know of others who choose to have their checkup closer to their home.
Rosemary

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@dustinleach808

Looking forward to this. Dr Croome performed my liver transplant 6 weeks ago yesterday. At 39 years old, he and the team at Mayo Jacksonville have given me a new lease on life. Words cannot express how thankful I am.

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@dustinleach808, Congratulations on your recent transplant. Wow! The presentation must have been really special for you - to see your transplant surgeon! I transplanted in 2009, and just this week, I saw my surgeon in the hallway during my annual checkup. That feeling will stay with you forever.
I want you to know that you are welcome to look thru our Transplant discussion Group where you can meet other transplant patients, and maybe discover some helpful hints and support for how to live and stay healthy with your new liver.
Rosemary

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@newliver

If I move out of the state where my Mayo clinic was does my transplant team recommend a place for me to get my yearly check ups or does it mean I have to return always to my orginal transplant hospital

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@newliver and @rosemarya When I was considering dual listing at Mayo they said they would take most of the pre-transplant test results from Mass General, and that after about six weeks or two months -- I forget which -- I would be able to continue my followups at Mass General. I am sure that they are comfortable with coordinating with MGH because it is also so highly regarded. I do like having my follow-up at the hospital that did my transplant though so I am glad that I was able to get my transplant there.
JK

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@rosemarya

Save me a front row seat! I am looking forward to this.
Rosemary

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@audreylaine Thank you. I didn't manage to tune in until after 1:00 yesterday so I definitely want to go back and hear it all. Also, I have a hearing problem and some of it was unclear so I hope I will be able to hear it better when I play it again. The doctor's voice tended to trail off at the end of his responses, a common trait, but it does make it more difficult for those of us who are hearing impaired.
JK

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@newliver

can we be told our donors age or sex? Can we take on some of our donors dna?

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@newliver Before I was discharged the hospital gave me a packet with information, what to include and not to include in a letter to the donor family, etc. They gave me an envelope addressed to the local coordinator for me to send the letter to. They also suggested I wait a few months in hopes that although grief will never go away it might not be quite as painful.
It was the most difficult letter I ever wrote. I did it over a few days.
JK

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