Webinar: Treatment of Pediatric Brain Tumors: Low Grade Gliomas

Thu, May 28, 2015
11:30am to 12:30pm ET

Description

An overview of treatment options for children with low grade gliomas is discussed. The webinar features Mayo Clinic Pediatric Neurosurgeon, David Daniels, M.D.,  and Mayo Clinic Pediatric Neurologist, Gesina Keating, M.D.. Both physicians discuss diagnosis and treatment options including: observation, surgery and chemotherapy. Follow-up care for children with low grade gliomas is also be discussed including: Pilocytic Astrocytomas, Gangliogliomas, DNETs and other low grade brain tumors. After the presentation Dr. Daniels and Dr. Keating answered questions.

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My son has a JPA in the brainstem. I have heard that this type of tumor tend to stop growing in their 20's - is this true??

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You spoke of the grade of a tumor in pediatrics holding true throughout its life. What is the likelihood of a 2nd tumor of a different grade developing?

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Our 4 y/o son had DNET removed (90-95%). Do you have any data, insight, etc., in terms of genetic / hereditary incidence for siblings or across generations? Thank you.

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@meljon7981

My granddaughter has an optic pathway tumor on the chiasm and in the hypothalamus. She has the Suprellin implant for precocious puberty and she has IGF1 excess. Sandostatin has not stopped her growth. We are going to try somavert , when we get an insurance over-ride to pay for it. Do you have any suggestions? She is also on avastin/ irinotecan therapy right now.

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She is 5

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Thank you for addressing my question. If it matters, her tumor was on the temporal lobe (right hemisphere).

(Emotionally struggling ganglioglioma resection)

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My 10 year old daughter with the IDH1 mutation has just finished carboplatin vincristine as a treatment. She has 2 diffuse astrocytomas. The last 2 MRI's have been stable. We have been watching these tumors for 5 years prior to treatment and started chemo because the tumor in her thalamic region was slowly growing . Only the tumor in her right frontal lobe was biopsied(this tumor has been stable for 3 years now), so we truly don't know what the second tumor is in her thalamic region. Doctors are assuming it is the same type. The tumor in her right frontal lobe looks diffuse on an MRI, the tumor in her thalamic region looks like a small round marble. The IDH1 mutation scares me because it may have the potential to transform to a higher grade tumor. Does Mayo have any data and/or advice regarding a 10 year old with IDH1 mutation?

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I wasn't able to watch the webinar. Will it be available to watch again? Is there still a chance to ask questions of the doctors?

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@mommydevins

I wasn't able to watch the webinar. Will it be available to watch again? Is there still a chance to ask questions of the doctors?

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Hi Liz - yes you watch the webinar anytime on this page and later on YouTube. We experienced some technical issues and are working to update those on the post-viewing version. Please ask your question here and I can share with the physicians.

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My 11-year old daughter was diagnosed with a low grade glial neoplasm in the right thalamus (23 mm x 21 mm) in February. Because of its location only a small sample was recovered for biopsy. She presented with headaches, but has had none since surgery - a ventriculostomy was also performed to relieve hydocephalus. Initial swelling in her optic nerves has improved. She does not have any other outward symptoms. Current recommendation is to have MRI scans every 3 months to confirm diagnosis and to monitor. We would be interested in hearing any of your thoughts and advice.

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Is it common for an Oligodendroglioma to return in a different location than the original tumor?

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