HI Lori–thanks for your reply. I went through all the OTC ointments and drops and nothing worked. FWIW I was graded IV on the ocular gvhd chart. Mayo mixes my serum tears (I live in Mesa AZ).
I think the vaccine MAY have caused a flare, but who knows-?–I really hesitate on the pred, because I am scheduled for removal of a cholesteatoma on 4-6 (ear surgery). If it gets much worse I will. I see EVERYBODY next week (pre-surg, ophthalmology and hematology). I have been having some mid-back pain when I am up for extended periods (standing or sitting–especially with arms extended like cooking) and that is contributing to my fatigue I think. I do have really good days–I just have to remember that I can't spend all my energy on those days. I just tell myself, every birthday I get to see my grandkids celebrate and every milestone my adult kids pass make this all worthwhile.