← Return to B1(Thiamine) levels checked if you have nerve problems with cancer

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I have neuropathy in some of my fingers and feet since chemotherapy in the Fall of 2018. After 1 1/2 years the nurse in the breast center at Mayo suggested acupuncture. It has really helped especially if I can get a treatment every other week. Wondered why it as not recommend earlier.

At my 2 year follow-up I asked for my B12 levels to be checked. They were about as low as they could be. Probably one reason why I was always so fatigued and thus had no energy nor desire to do anything. Happy to report that after taking 500 mg of B12 for about a month now I am feeling more like myself. In following up to your post why aren’t tests for these vitamins (and others) routine for cancer patients? I will be asking for my B1 level to be checked at my next follow-up. Thank you so much for the heads up! We indeed need to be the advocates for our own health.

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Replies to "I have neuropathy in some of my fingers and feet since chemotherapy in the Fall of..."

Acupuncture helps some people with neuropathy, and not others. Seems like each of us are so different. I am so glad the B12 helped you feel more like yourself. My B12 was borderline on the low side, and i had B12 shots for months, but it did not help at all. I just don't think B1 is part of neuropathy treatment in the USA very much. Taking Benfotiamine was a true miracle for me. Within about 48 hours of taking it, my pain is gone for many hours on end, and usually only bothers me just a bit at night. A true miracle. Yes, I do think every cancer patient should check their B1, thiamine levels. The literature about low thiamine and its connection to cancer is out there!! I was flabbergasted that not one of my docs checked my B1. It was only due to a sweet lady on Mayo Connect Neuropathy group, that I discovered this miracle. I have my life back again. Best of luck, Mugs!!!! LoriRenee1