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New to Neuropathy 2 months.

Neuropathy | Last Active: Feb 1, 2022 | Replies (69)

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@bethunger

Hello Hank-great name by the way. It is kind of you to welcome me. I am so very sorry about your wife's suffering. My diagnosis was for idiopathic. neuropathy. My doctor said it means they were idiots! funny man. It just means they don't know what caused it. When I couldn't run or ride any longer, I eventually became diabetic. Diabetes is often the cause for neuropathy, but I wonder how many diagnosis could have been the opposite of that. I started having tingling and pain about 10 years ago. I should say I did have a bout of Sepsis. I had that around 12 years ago. After quite some time in the hospital, I was thankfully able to come home. However, it left me with seizures that I still deal with. I wonder also if the Sepsis could play a factor in the neuropathic difficulties. Well, I sound as if I am rambling so I will close. I hope your wife and you find some further help so that she can reclaim her life a little. My best, Beth

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@bethunger
Hello Beth,
Sorry to hear about your Neuropathy. I've had Idiopathic Neuropathy for 30-40 years although I thankfully no longer have the horrible debilitating various pain sensations associated with it. Now I just have numbness. It's too bad you developed seizures. I too have Epilepsy. Although we don't get a lot of people with seizure-related questions, I'd like to invite you to join us in the Seizure section of Connect. You may have questions yourself or be of help to others. Again, I hope you will join us. We are located here,
https://connect.mayoclinic.org/group/epilepsy-2bb359/
Did you have Diabetes at the time you developed Neuropathy symptoms?
The care,
Jake

@bethunger

Beth, your neuropathy might be related to your episode with sepsis. Here are a couple of article I turned up:

https://www.global-sepsis-alliance.org/news/2017/10/2/the-hidden-faces-of-sepsis-what-do-they-tell-us-focal-points-for-improving-patient-outcome
https://pubmed.ncbi.nlm.nih.gov/11757954/
Your diabetes certainly could be a contributor to PN, but the sepsis might be the origin. I'd be interested in your take.
I wish you well, Hank