1. < Transplants

To vaccinate or not to vaccinate? That is the question.

Posted by silverwoman @silverwoman, Jan 4, 2021

<p>I know I am not the only post-transplant patient who is thinking about getting the coVID vaccination. My nurse coordinator has told me that the transplant team at Jacksonville has not approved vaccination yet because of the lack of experience with it for our group. One of the Infectious Disease doctors has indicated in a Mayo communication that transplants should be getting vaccinated. The nurse coordinator has said that if we choose to get vaccinated then we should do our laboratories once a week. I'm frustrated and confused by the lack of clear guidance and seemingly conflicting opinions. Is anybody else feeling like this? Have you made any decisions about when and if you will get vaccinated?</p>

Interested in more discussions like this? Go to the Transplants Support Group.

healthhopefreedom | @healthhopefreedom | Jan 5, 2021
In reply to @danab "@silverwoman I am also very concerned about this issue and have done an extensive research on..." + (show)
@danab

@silverwoman I am also very concerned about this issue and have done an extensive research on pros and cons. Besides some hesitation based on the failures I have heard about having to do with mRNA type drugs I am concerned as to the rush to a vaccine that some have stated skipped normal protocols that other vaccines are subject to. The area that really has me thinking is they call this an emergency authorization and I have see reports on another drug that has been in use for many years and some doctors are having great success with but they are trying to get the powers to be to look at there findings and get the recommendation started as to there effectiveness.
The drug I'm talking about is Ivermectim and a doctor just recently testified in the Senate about it. Here is the link but it concerns me they are pushing this mRNA vaccine when there could be other options out there. I'm starting to think it's about money. The pharmaceuticals spent a lot of money and now I'm concernerd they won't look at other options.

https://youtu.be/Tq8SXOBy-4w

So I'm personally can wait for more data since I have been doing fine with the basics, Masks, hand washing and distance. Believe it or not it's time tested back to Bibical times as to how to handle pandemics.
Have a Blessed Day
Dana

Jump to this post

@danab , nearly all of the clinical trials are biased and supported/funded by interest groups involved directly with pharmaceutical companies. It’s almost impossible to achieve trials without that funding because doctors want to go where the money is. This is an issue we have with rare disease advocacy and often people opt out of unbiased studies because there isn’t money involved. It’s a shame. It’s definitely time for us as patients to wake up to this reality.

REPLY
cmael | @cmael | Jan 5, 2021
In reply to @danab "@silverwoman I am also very concerned about this issue and have done an extensive research on..." + (show)
@danab

@silverwoman I am also very concerned about this issue and have done an extensive research on pros and cons. Besides some hesitation based on the failures I have heard about having to do with mRNA type drugs I am concerned as to the rush to a vaccine that some have stated skipped normal protocols that other vaccines are subject to. The area that really has me thinking is they call this an emergency authorization and I have see reports on another drug that has been in use for many years and some doctors are having great success with but they are trying to get the powers to be to look at there findings and get the recommendation started as to there effectiveness.
The drug I'm talking about is Ivermectim and a doctor just recently testified in the Senate about it. Here is the link but it concerns me they are pushing this mRNA vaccine when there could be other options out there. I'm starting to think it's about money. The pharmaceuticals spent a lot of money and now I'm concernerd they won't look at other options.

https://youtu.be/Tq8SXOBy-4w

So I'm personally can wait for more data since I have been doing fine with the basics, Masks, hand washing and distance. Believe it or not it's time tested back to Bibical times as to how to handle pandemics.
Have a Blessed Day
Dana

Jump to this post

When we had horses we’d give them Ivermectin to get rid of parasites. Didn’t know it was also antiviral.

REPLY
silverwoman | @silverwoman | Jan 5, 2021

While I do understand your reasoning, I hope you will continue to isolate and wear your mask, etc. This virus is lethal and doubly dangerous for those of us who are immune compromised. Until you are comfortable enough with the vaccine to take it, please be safe.

REPLY
estrada53 | @estrada53 | Jan 5, 2021
In reply to @danab "@silverwoman I am also very concerned about this issue and have done an extensive research on..." + (show)
@danab

@silverwoman I am also very concerned about this issue and have done an extensive research on pros and cons. Besides some hesitation based on the failures I have heard about having to do with mRNA type drugs I am concerned as to the rush to a vaccine that some have stated skipped normal protocols that other vaccines are subject to. The area that really has me thinking is they call this an emergency authorization and I have see reports on another drug that has been in use for many years and some doctors are having great success with but they are trying to get the powers to be to look at there findings and get the recommendation started as to there effectiveness.
The drug I'm talking about is Ivermectim and a doctor just recently testified in the Senate about it. Here is the link but it concerns me they are pushing this mRNA vaccine when there could be other options out there. I'm starting to think it's about money. The pharmaceuticals spent a lot of money and now I'm concernerd they won't look at other options.

https://youtu.be/Tq8SXOBy-4w

So I'm personally can wait for more data since I have been doing fine with the basics, Masks, hand washing and distance. Believe it or not it's time tested back to Bibical times as to how to handle pandemics.
Have a Blessed Day
Dana

Jump to this post

Dana, Did you talk to your transplant doctors about Ivermectin? I would be very interested in what they have to say about this? Have you asked to be prescribed this med?
Thanks, Ellen

REPLY
1 reply
mayofeb2020 | @mayofeb2020 | Jan 5, 2021

Israel has vaccinated 60% of their population over 60 years old as of today. They expect 80% of the general population vaccinated in a couple of months. Their health care system is really on the ball. Why are we so far behind? It's so frustrating.

REPLY
cmael | @cmael | Jan 5, 2021

I messaged my care team today. The response looked like standard recommendations saying that they recommend transplant patients to get the vaccine if you haven’t shown signs of rejection recently.

REPLY
1 reply
Mentor
Dana, Volunteer Mentor | @danab | Jan 6, 2021
In reply to @estrada53 "Dana, Did you talk to your transplant doctors about Ivermectin? I would be very interested in..." + (show)
@estrada53

Dana, Did you talk to your transplant doctors about Ivermectin? I would be very interested in what they have to say about this? Have you asked to be prescribed this med?
Thanks, Ellen

Jump to this post

Thanks I will tho I have my yearly on the 19th.

REPLY
JK | @contentandwell | Jan 6, 2021
In reply to @cmael "I messaged my care team today. The response looked like standard recommendations saying that they recommend..." + (show)
@cmael

I messaged my care team today. The response looked like standard recommendations saying that they recommend transplant patients to get the vaccine if you haven’t shown signs of rejection recently.

Jump to this post

@cmael What hospital is your transplant team at? I am wondering because I have heard nothing yet from my hospital, Mass General, and I really want to get this vaccine. As I have heard many transplant teams have said, the side effects of the virus will be much less serious than the potential side-effects of the vaccine.

Seriously, look at how many people have died from COVID already. It's on the rise everywhere in this country, and I read that in CA it's so bad that ambulance companies have been told that patients who they believe have little chance of survival should not be brought to the hospital! So, the ambulance personnel are making that life or death decision? That just does not seem right to me.

To paraphrase the older gentleman in England who got the vaccine, "I've come this far, I don't want to die from Covid", and it is rampant everywhere now due to people not respecting the no-travel advice over the holidays.
JK

REPLY
2 replies
Mentor
Rosemary, Volunteer Mentor | @rosemarya | Jan 6, 2021
In reply to @contentandwell "@cmael What hospital is your transplant team at? I am wondering because I have heard nothing..." + (show)
@contentandwell

@cmael What hospital is your transplant team at? I am wondering because I have heard nothing yet from my hospital, Mass General, and I really want to get this vaccine. As I have heard many transplant teams have said, the side effects of the virus will be much less serious than the potential side-effects of the vaccine.

Seriously, look at how many people have died from COVID already. It's on the rise everywhere in this country, and I read that in CA it's so bad that ambulance companies have been told that patients who they believe have little chance of survival should not be brought to the hospital! So, the ambulance personnel are making that life or death decision? That just does not seem right to me.

To paraphrase the older gentleman in England who got the vaccine, "I've come this far, I don't want to die from Covid", and it is rampant everywhere now due to people not respecting the no-travel advice over the holidays.
JK

Jump to this post

@contentandwell, I have a thought (okay, a question). Have you contacted your transplant team? Why wait to hear from them?

REPLY
2 replies
estrada53 | @estrada53 | Jan 6, 2021
In reply to @rosemarya "@contentandwell, I have a thought (okay, a question). Have you contacted your transplant team? Why wait..." + (show)
@rosemarya

@contentandwell, I have a thought (okay, a question). Have you contacted your transplant team? Why wait to hear from them?

Jump to this post

I agree with this. Why wait for an appointment or to hear from the hospital? Email your team now and ask for specific individual advice for yourself! Be proactive in this!

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