← Return to Help needed! What could my symptoms possibly mean?!

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@jenniferhunter

@romeo2020 Welcome to Connect. I presume your EEG was a sleep study of your brain waves? What did they image with an MRI? Did they do brain and full spine imaging? Did they check for inflammatory diseases that affect nerves and muscles like MS, etc? Am I correct in assuming that you are a guy with a user name like Romeo? So many of your symptoms could be anxiety related, or even something like Lyme disease or an exposure to something toxic like toxic black mold. With that in mind, have there been any roof or water leaks in your home? If you leave home and stay at a hotel, do you have the same symptoms? Have you considered gluten issues? That can produce gas and bloating and it's easy to test. You can also try for a week to avoid all grains, bread, pasta, etc and see if that changes anything. Have you had surgeries? Do you have any surgical implants or foreign materials in your body? I ask that because surgery creates scar tissue which can entrap nerves. Was your thyroid function normal? Too high levels of thyroid hormones cause symptoms very much like anxiety. Have there been traumatic events in your life that could be triggering PTSD with a thought or memory? You may want to write down your symptoms and what you were thinking about at the time it happened in case that will reveal any clues. If mainstream medicine doesn't find answers, you may want to consider an environmental allergy medicine physician or functional medicine. there is a provider search at https://www.aaemonline.org/find.php . Personally, my environmental medicine doctor has helped me a lot. You will also find educational information at the practice that pioneered this field of medicine at https://www.ehcd.com/. It is good to be asking questions like this of your doctors instead of waiting for them to think of something. You may get an explanation, or a response that they could look at your suggestion.

One thing I could suggest even if they don't know what causes the physical problems is to try myofascial release with a physical therapist. I have done this for several years and it removes the tightness and fascial restrictions in the muscles and allows the body to get back into better alignment. It also allows the tissues to be re-hydrated and release waste products that are stored there. It may be able to address the GI issues if your intestines have adhesions or restrictions in their movements. Have you done the normal GI screenings like a colonoscopy? If anything here rings some bells, discuss that with your neurologist.
Here is our MFR discussion. There is a provider search at http://mfrtherapists.com/
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

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Replies to "@romeo2020 Welcome to Connect. I presume your EEG was a sleep study of your brain waves?..."

Thank you for your detailed post. I´ll answer your question one by one.

1. EEG: they put the wires on my head and just asked me to keep my eyes shut for five minutes or so. Despite the fact that I experienced three tremors during it, they said that they found nothing.

2. MRI: was done of my head, neck and chest, not the spine. inflammatory diseases that affect nerves and muscles like MS were not check, as I was given a thumbs up by the neurologist after the EEG and MRI scans.

3. No, no water leakage or anything like that. Also, my symptoms stay even if I spend days away from home. However, here´s something IMPORTANT: I consumed a spoon of honey and had a massive allergic reaction to it (mild breathing issue, but felt as if my facial skin was swollen, and had minor vision problems, but strong hearing issues). I was prescribed a short steroids therapy. All my symptoms relented after two weeks, but four weeks after that allergy attack, I developed the symptoms referred to in my opening post!

Could the honey be the cause?

4. Gluten issues have been ruled out. Funnily, my gastrointestinal issues get worse with vegetable consumption, as it causes an increase of too much intestinal activity, and hence bloating.

5. Surgeries: one in 2005 on my fractured arm, one on abdomen in 2010 due to hiatal hernia (all well with that now as revealed by a CT scan, so that´s not the cause here). So, both happened ages ago.

6. I chose Romeo as my username because I´m an admirer of Shakespeare. Haha! As for anxiety, I was personally the first person to see it that way, but three mental health specialists have completely denied that by now, especially given how the medicines that they give me worsen my issues. Also, anxiety should at least be calmed by Benzodiazepines, no? Here, even they´re ineffective. I don´t deny it, but I don´t see any success that way either.

7. PTSD or incident etc. in life: well, nothing beyond the honey allergy attack story shared above!

Also, thank you for your other suggestions. Really valued. I´m based in Germany, by the way.

Regards.