‘‘Twas the Night Before Christmas”

Can I ask you how long your on Arikayce and how are you feeling I need someone eles also to compare notes with if you wouldn’t mind I’ve been on it for 14 days now

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@sounder27 That is interesting and certainly understandable. Being part of an Arikayce clinical trial requires me to be able to tolerate two of the three Big 3 meds. I am guessing you are not in the clinical trial of Arikayce?? I did not know there was any other option based on the approval status of that medication. Good to know! irene5

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Thanks to Jennifer for raising all of these questions and providing us with more learning opportunities. I hope that Jennifer gets all of her questions answered. It is so stressful to find your way when you are diagnosed with bronchiectasis and Mac and this group has been a lifesaver for many of us.

I have another question for those who have shared information about other medical challenges: Do you think that these are coincidental or a result of (or in some way connected to) Mac? I seem to have become a regular at my doctor’s office and sometimes feel like I should add hypochondriac to my list of ailments.

Happy New Year to everyone and many thanks for being a continuing source of information and support!

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Here is my 2cents for the group...every living human beings has symptoms...can be as mild as a twitch of the eye (neurological), mild shake of the hand (tremors/neuro), clearing of the throat (gastro/allergic/structural), chest flutters (anxiety/cardiac/respiratory)...not one of us on this planet is free from our own human conditions. It is (in my opinion) a matter of scale...to what degree do these symptoms impact or change the whole system. As we, each of us, is linked (whether we believe or not) every body part and operation is dependent or affected by another...SO...how can it NOT be that when we are faced with any true organic issue (some diagnosis) our mental focus is hyper vigilant. Now, every ache pain swelling sound wrinkle stain fluid sensation and pain...logically must be “linked” our minds tell us....or must be collateral consequence to the other. Of course, sometimes these symptoms ARE direct results of another condition...but here is the trap of despair and hopelessness that can take hold of our senses.

As my wise Mother would repeat to me...the whinnying child...”focus and put your energy into fixing one problem at a time...you may see that some of the others will fade...”

I feel that surrounding oneself with true talent (medical) loving family & friends, and working diligently hard at preserving and caring for this shell of our human exterior...and very important...live with a mind of gratitude (for whatever)...helps keep the “monkey mind” of excessive worry...more quiet.

I wish every one of you a healthy and abundant 2021.
Regina

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Here is my 2cents for the group...every living human beings has symptoms...can be as mild as a twitch of the eye (neurological), mild shake of the hand (tremors/neuro), clearing of the throat (gastro/allergic/structural), chest flutters (anxiety/cardiac/respiratory)...not one of us on this planet is free from our own human conditions. It is (in my opinion) a matter of scale...to what degree do these symptoms impact or change the whole system. As we, each of us, is linked (whether we believe or not) every body part and operation is dependent or affected by another...SO...how can it NOT be that when we are faced with any true organic issue (some diagnosis) our mental focus is hyper vigilant. Now, every ache pain swelling sound wrinkle stain fluid sensation and pain...logically must be “linked” our minds tell us....or must be collateral consequence to the other. Of course, sometimes these symptoms ARE direct results of another condition...but here is the trap of despair and hopelessness that can take hold of our senses.

As my wise Mother would repeat to me...the whinnying child...”focus and put your energy into fixing one problem at a time...you may see that some of the others will fade...”

I feel that surrounding oneself with true talent (medical) loving family & friends, and working diligently hard at preserving and caring for this shell of our human exterior...and very important...live with a mind of gratitude (for whatever)...helps keep the “monkey mind” of excessive worry...more quiet.

I wish every one of you a healthy and abundant 2021.
Regina

Jump to this post

Here is my 2cents for the group...every living human beings has symptoms...can be as mild as a twitch of the eye (neurological), mild shake of the hand (tremors/neuro), clearing of the throat (gastro/allergic/structural), chest flutters (anxiety/cardiac/respiratory)...not one of us on this planet is free from our own human conditions. It is (in my opinion) a matter of scale...to what degree do these symptoms impact or change the whole system. As we, each of us, is linked (whether we believe or not) every body part and operation is dependent or affected by another...SO...how can it NOT be that when we are faced with any true organic issue (some diagnosis) our mental focus is hyper vigilant. Now, every ache pain swelling sound wrinkle stain fluid sensation and pain...logically must be “linked” our minds tell us....or must be collateral consequence to the other. Of course, sometimes these symptoms ARE direct results of another condition...but here is the trap of despair and hopelessness that can take hold of our senses.

As my wise Mother would repeat to me...the whinnying child...”focus and put your energy into fixing one problem at a time...you may see that some of the others will fade...”

I feel that surrounding oneself with true talent (medical) loving family & friends, and working diligently hard at preserving and caring for this shell of our human exterior...and very important...live with a mind of gratitude (for whatever)...helps keep the “monkey mind” of excessive worry...more quiet.

I wish every one of you a healthy and abundant 2021.
Regina

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jr2366. I am actually feeling so much better since I’ve been on the Arikayce. I hardly cough at all and I can take a really deep breath and not feel a catch in my bronchial area. I can even lay flat on the floor to exercise without having to elevate my head...and that’s an accomplishment because before I would cough and cough. I will keep you posted after I get my cultures back.

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Here is my 2cents for the group...every living human beings has symptoms...can be as mild as a twitch of the eye (neurological), mild shake of the hand (tremors/neuro), clearing of the throat (gastro/allergic/structural), chest flutters (anxiety/cardiac/respiratory)...not one of us on this planet is free from our own human conditions. It is (in my opinion) a matter of scale...to what degree do these symptoms impact or change the whole system. As we, each of us, is linked (whether we believe or not) every body part and operation is dependent or affected by another...SO...how can it NOT be that when we are faced with any true organic issue (some diagnosis) our mental focus is hyper vigilant. Now, every ache pain swelling sound wrinkle stain fluid sensation and pain...logically must be “linked” our minds tell us....or must be collateral consequence to the other. Of course, sometimes these symptoms ARE direct results of another condition...but here is the trap of despair and hopelessness that can take hold of our senses.

As my wise Mother would repeat to me...the whinnying child...”focus and put your energy into fixing one problem at a time...you may see that some of the others will fade...”

I feel that surrounding oneself with true talent (medical) loving family & friends, and working diligently hard at preserving and caring for this shell of our human exterior...and very important...live with a mind of gratitude (for whatever)...helps keep the “monkey mind” of excessive worry...more quiet.

I wish every one of you a healthy and abundant 2021.
Regina

Jump to this post

Here is my 2cents for the group...every living human beings has symptoms...can be as mild as a twitch of the eye (neurological), mild shake of the hand (tremors/neuro), clearing of the throat (gastro/allergic/structural), chest flutters (anxiety/cardiac/respiratory)...not one of us on this planet is free from our own human conditions. It is (in my opinion) a matter of scale...to what degree do these symptoms impact or change the whole system. As we, each of us, is linked (whether we believe or not) every body part and operation is dependent or affected by another...SO...how can it NOT be that when we are faced with any true organic issue (some diagnosis) our mental focus is hyper vigilant. Now, every ache pain swelling sound wrinkle stain fluid sensation and pain...logically must be “linked” our minds tell us....or must be collateral consequence to the other. Of course, sometimes these symptoms ARE direct results of another condition...but here is the trap of despair and hopelessness that can take hold of our senses.

As my wise Mother would repeat to me...the whinnying child...”focus and put your energy into fixing one problem at a time...you may see that some of the others will fade...”

I feel that surrounding oneself with true talent (medical) loving family & friends, and working diligently hard at preserving and caring for this shell of our human exterior...and very important...live with a mind of gratitude (for whatever)...helps keep the “monkey mind” of excessive worry...more quiet.

I wish every one of you a healthy and abundant 2021.
Regina

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