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‘‘Twas the Night Before Christmas”

MAC & Bronchiectasis | Last Active: Jan 12, 2021 | Replies (76)

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@ellenn

Thanks everyone for connecting to those of us who feel so alone at times!
Does anyone ever cough up blood? What do you do about it?
I wonder if I'm rupturing something by doing the Aerobica twice within 2-3 hours.
My husband also does the percussion before I use the Aerobica - maybe that's too much.
Also is your chest always tight, mine is.
Thanks, Ellen

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Replies to "Thanks everyone for connecting to those of us who feel so alone at times! Does anyone..."

@ellenn Hi Ellen, I’ve also coughed up blood a few times. I know it is something that happens to people with Bronchiectasis if there is inflammation. Knowing that doesn’t make it any less scary or worrisome. If it’s just a little I see mixed in with sputum when I’m coughing, I just continue on about my day. A couple of times it has just “bubbled up”, (for want of a better explanation). That is the scary time. I just TRY to remain calm, stay in an upright position, and not move around too much. It stops quickly, but I always go to my pulmonologist or PCP the next day. I also take a break from my Aerobika for the next day. Thankfully, that has only happened 2 or 3 times in the past 4 years.
I hope it helps knowing you are not alone in this.
Gina

Hi Ellen - I have not coughed up blood since my pneumonia was at its worst, but there are some here who do. My doc's guidance was "2 tsp or less, let it be. Continuous or copious, call me." You may want to call/email/text your own doc for advice.
As for chest tightness, do you have a "rescue inhaler" like albuterol? When my chest feel tight, I use it 20-30 minutes before airway clearance. It eases the tight feeling and opens airways so stuff comes up better.Again, ask your docs...
Sue

Sue is Aeorbica same as Arikayce ? I feel tightness as well in my chest and it’s only been about 12 days in . And feeling alone yea definitely and I feel like some of my questions are alittle but much like for instance can we live a long life with Mac ?