Is it safe to get the Corona Virus (COVID-19) vaccine with PMR?

Posted by ncgal @ncgal, Nov 19, 2020

Just wondering if anyone has found out if it is okay to get the corona virus vaccine once it comes out. I'm 78, so past the 65+ age for early vaccinations, plus having the autoimmune diagnosis. I don't see my rheumatologist for another two months but guess I'll call him to find out if t comes to that. Just thought I'd see if anyone else has found out. I had no problem with the flu shot.

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

<p><strong>Covid 19 vac and pmr</strong></p><p>I have pmr for 1 year and managed by my physicians. Was recommended to get the vaccine and did so. No problems. Minor soreness gone in 2 days. Feeling very grateful and hope more people get vaccines too.</p>

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@kathylovgren

<p><strong>Covid 19 vac and pmr</strong></p><p>I have pmr for 1 year and managed by my physicians. Was recommended to get the vaccine and did so. No problems. Minor soreness gone in 2 days. Feeling very grateful and hope more people get vaccines too.</p>

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@kathylovgren You took the vaccine and you are wanting to share your positive experience with members like @woogie @ppr @pampep @kcmartin71 @briand3960.

You will notice that I moved your question to a previous discussion on this exact topic. I did this so you could connect with more members on this topic in a central location.

May I ask if there is any public information available regarding the COVID-19 vaccine and PMR?

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@kathylovgren

<p><strong>Covid 19 vac and pmr</strong></p><p>I have pmr for 1 year and managed by my physicians. Was recommended to get the vaccine and did so. No problems. Minor soreness gone in 2 days. Feeling very grateful and hope more people get vaccines too.</p>

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@kathylovgren I am always grateful to read of others' reactions or non-reactions to different vaccines, whther it is Covid-19 or another. As someone with multiple health issues, I am kept aware of possible things to watch for, and buoyed by seeing someone happy to report success.
Ginger

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@jennyjay

I’ve just received my first Astra Zenica jab in UK - and so far, very happy to receive anything on offer. BUT I’ve just heard about the new Novavax vaccine in preparation - that it’s over 90% effective, and contains a powerful adjuvant from a rare tree in Chile which produces an intense immune response.
Now where have I heard that before? Ah yes, it’s exactly that adjuvant which is used in Shingrix, after which I (a previously healthy 72 year-old) developed PMR – mild compared with so many on this site (I managed it myself just on regular ibuprofen) – but from which I’m only now emerging after 16 months.
Just sayin’...
https://www.medpagetoday.com/meetingcoverage/oar/74765

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@roboedit @sherrybird @jennyjay @kcmartin71 @pampep Welcome and welcome back to Mayo Clinic Connect, a place to give and get support.

You have all already connect with members. PMR and Corona Virus (COVID-19) vaccine is a hot topic.

Below I have linked information related to the COVID-19 vaccine and PMR.
- COVID-19 FAQs: Medications, Treatment and Vaccines https://www.arthritis.org/health-wellness/about-arthritis/related-conditions/other-diseases/covid-19-faqs-medication-treatment-and-vaccines
- Latest COVID-19 News https://www.rheumatology.org/announcements

This is a new virus and vaccine. May I ask what kinds of organizations are best consulted regarding PMR and the COVID-19 vaccine?

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@pampep

Yes, I'm on the same skd as you second dose on 24th. Had just a little sore arm . I have been weaning down on prednisone and am on 4mg. My Rheumatologist said to stay on it. Wish there was info as to take or not take before vaccine. Does Mayo have an answer??
pampep3

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I’m sure the flu vaccine was the trigger for my PMR last October. I’m still trying to taper off the prednisone. I can’t stand being on it. I’m down to to 7.5 mg. I still am experiencing pain in my shoulders and arms but I just want to be off the prednisone. I am not in the age group to get the covid vaccine soon but I don’t want to get it when it’s available. I feel I may have another severe flare up.

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@kristem2020

I’m sure the flu vaccine was the trigger for my PMR last October. I’m still trying to taper off the prednisone. I can’t stand being on it. I’m down to to 7.5 mg. I still am experiencing pain in my shoulders and arms but I just want to be off the prednisone. I am not in the age group to get the covid vaccine soon but I don’t want to get it when it’s available. I feel I may have another severe flare up.

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I had first vaccine from merdena and only had a sore arm. I had huge problems with the flu and shingles shot. I get second shot on the 26th.

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@gingerw

@kathylovgren I am always grateful to read of others' reactions or non-reactions to different vaccines, whther it is Covid-19 or another. As someone with multiple health issues, I am kept aware of possible things to watch for, and buoyed by seeing someone happy to report success.
Ginger

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Very hard to believe that a flu shot caused PMR. Does your rheumatologist say that? I guess everyone's experience is different. I heard there are no known causes.

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I had my second Pfizer covid vaccine yesterday and so far no reaction, but was told it could take a few days. MY PMR symptoms started a year ago while I was on Cipro for the discovery of diverticulitis during my colonoscopy. I was on day 4 of a 7 day regimen when I felt like I had been hit by a truck. I had just finished my breast cancer treatments at the end of December so think my body just said "Whoa! Enough junk in my body to tolerate". Just my opinion, but since no one seems to know what triggers PMR I'll stick with that until someone tells me different. I'm 78 and on a steady 4 mgs. of Prednisone.

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@chris1949

Very hard to believe that a flu shot caused PMR. Does your rheumatologist say that? I guess everyone's experience is different. I heard there are no known causes.

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Actually, after being diagnosed with Mesenteric Panniculitis, I was then also diagnosed with PMR. My doctor said that very often people who suffer from one autoimmune disease are susceptible to having others. As far as I know, both MP and PMR are in the autoimmune disease category.

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@briand3960

I am a hospital pharmacist working on COVID-19 units who got PMR after my 2nd Shingrex vaccine. So I've been on the fence whether to get the vaccine or not. I'm down to 2 mg Prednisone after starting in March. I sure don't want a flare up of PMR but I see the severe illness that COVID-19 can cause. I'm encouraged with the roll out that no serious side effects have been seen yet. I likely will get it when the hospital offers it in the near future

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I am in the same camp. My PMR came from the Shingrix II, and nobody told me it was possible. In fact, I never had chicken pox, but was told I should get it anyway. The onset was almost immediate, and really kicked in after the second shot. I scoured the internet and only found whitewashed articles with no evidence of such side effects. So I have an autoimmune disorder for life I guess, .... and everybody is being so 'honest' about the unlikely damage to this battered old frame! If it works today, it will work tomorrow, ... and next year!

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