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Ask your doctor or pain clinic

Chronic Pain | Last Active: Nov 25, 2020 | Replies (25)

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@gingerw

@fourof5zs @faithwalker007 The responses from you both echo how I feel. My sister tells me at times how strong I am, how brave I am. Chronic pain is something I have lived with for decades, and I don't have any choice except to work through it in order to survive. Each person is different, each person handles their pain levels in different ways, and each person respects or not how it affects us. For myself I cannot allow the pain to define who I am. Some days are good some days are bad, and I can't look at a calendar in forecast what pain level will be any day. Just as ZeeGee said, how can you say a single number for your overall pain level on a day? I usually stall and say what part of my body are you talking about! I applaud each of us, for researching what may help us, sharing our discoveries, and persevering through it all.
Ginger

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Replies to "@fourof5zs @faithwalker007 The responses from you both echo how I feel. My sister tells me at..."

I agree with the incredible difficulty of picking a number... any number to describe your current pain level.
It comes down to speaking the same language.
For example, the Lakota (Sioux) word for horse is šúŋkawakȟáŋ which means “big dog.” When the Spaniards brought horses to the Great Plains and introduced them to the Sioux, they had no word for the animal. So they simply used what they already had in their own language and knew and described the new animal that way.
Those Indians who understood Spanish and could speak to the Spaniards in their own tongue did so and translated for the Chiefs and Healing Men to facilitate trade and treaties when possible.

That is what we need to do during these almost impossible times of acquiring much needed pain management due to roadblocks and antagonisms from the government.

Learning the FIRST language of our adversaries and/or reluctant PCPs and Pain Specialists is the most effective way to communicate with them. Alternatively, using your own language but in translated, altered form so whomever you are targeting UNDERSTANDS what you are trying to ask or explain on their level, of sophistication or education without confusion or question.

It is wise to remember that you are the patient and the person who is TECHNICALLY in control of your healthcare. You are the guide and source of care. You pay his bills.
However, your PCP or Pain Specialist is the one in the driver seat. He is who drives the care to more or less relief with your guidance and direction and most of all, honesty.

Speaking their language works. Showing your pain and life struggles work. Don’t get dramatic or “freely.”
Be matter of fact, detailed, and specific with markers they can track and measure. Information they can chart and evaluate.

That is what they understand. It’s not that they are cold and unfeeling. Providers are taught to measure, evaluate, and treat.