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lsittll (@lsittll)

VNS Battery replacement is it worth it?

Epilepsy & Seizures | Last Active: Nov 11, 2020 | Replies (9)

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@nicosmom

When Nico got his VNS at 11 years old, he having dozens of seizures a day and status events that would land him in the hospital a few times a month. All while on 5 meds and 2 emergency neds. He went straight to no seizures. Over the next 9 years he had 2 grand mals, both caused by high fevers. And he got down to 2 meds during that time.

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Replies to "When Nico got his VNS at 11 years old, he having dozens of seizures a day..."

@nicosmom I notice that you have been a member for awhile but that you only posted recently. I wanted to formally tell you, Welcome to Mayo Clinic Connect. It sounds like your son has had success with VNS. Is there any advice that you've picked up or things you wish you would have known, that'd you be willing to share?