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lsittll (@lsittll)

VNS Battery replacement is it worth it?

Epilepsy & Seizures | Last Active: 2 days ago | Replies (10)

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@jakedduck1

@isittll
I'm not very knowledgeable regarding the VNS. Although VNS is helpful in some my first thought is why beat a dead horse. But I'm not much of a VNS fan anyway. If it was working you'd be the most likely person to known I'd think. If I hadn’t noticed any difference in seizures in a nine year period I wouldn’t go through the battery replacement surgery.
Do you have any side effects from it? If you decide not to replace the battery would you have the coil removed?
I’m not sure what type of seizure activity shows up on your EEG, if any. But I'm curious if a lot of Focal or Tonic-Clonic activity showed up on the EEG yet didn't progress to an actual symptomatic seizure, would the VNS suppress any of that activity? Does anyone know? Personally I would think it would but I don’t now.
@nicosmom
Glad your son is benefiting from his VNS.
How often did your son have seizures prior to versus post VNS implant?
Take care & hope you both are seizure-free,
Jake

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Replies to "@isittll I'm not very knowledgeable regarding the VNS. Although VNS is helpful in some my first..."

When Nico got his VNS at 11 years old, he having dozens of seizures a day and status events that would land him in the hospital a few times a month. All while on 5 meds and 2 emergency neds. He went straight to no seizures. Over the next 9 years he had 2 grand mals, both caused by high fevers. And he got down to 2 meds during that time.