Help me please only 27!!!

@10987654321- sorry I’ve tried to relink this better...

@10987654321- I feel I need to mention w/ the link I provided, that is by no means a diagnosis as I am not a professional in this area. It is just an array of different neurological symptoms that have been known to occur, after a nasal/sinus procedure.
The nasal/sinus function is part of the autonomic nervous system. The cranial nerves that innervate the sinus/nasal cavity are very strong and have a powerful connection w/ the parasympathetic nervous system (fight or flight response). This can cause a cascade of other events when not in homeostasis. So it is just a suggestion to not rule out working with people who fully understand the cranial nerves and the cross over into other parts of the body’s CNS (central nervous system). If check back and have any questions, I’d be more than happy to answer where I can.

I think I have empty nose syndrome as my nose is dry and crusty and all screwed up. It was never right after surgery. However, I think something else happened that caused all the rest of this too... maybe an infection or something?

I had an emg last year that came back with sensory demylenating polynnejropathy

No one did anything

Then they did another emg and said it was fine (different network)

Now I can barely walk my muscles are becoming increasingly weak (I have developed weird hairs my kneee bows in and my hips away when I walk and my legs wobble and my wrist feels limp)

I’m also losing feeling however I can still scratch the outside it’s more the inside like how my joints and feet are supposed to work (it’s almost like a hollow weak muscle feeling)

I can barely walk through the store with a shipping cart

Recently they told me I don’t want to go back to work and to go to physical therapist and pain clinic (it’s more lack of feeling when pain) physical therapist I can barely even walk in building

They told me it’s made up and it’s functional/conversion disorder

Def not made up I feel pretty helpless and really scared

I tried I was rejected from Cleveland clinic twice (no idea why) and rejected from Mayo John Hopkins insurance

Also Pittsburgh neurology told me essentially they can’t see me anymore so im lost....

I know it started with this.... I was worried about ens before the surgery and was assure I’d be ok (not)

However idk what happened that caused all the other stuff after mental confusion severe personality/cognitive change ears ringing walking problems gaits muscle weaknesss chronic fatigue etc all the rest of the bad

I wonder if I got an infection however I won’t know now now how do I treat what is left....?

I’m so lost someone told me maybe ivig???? Have any of you heard of that could that help me?

If nothing else, thanks for your concern and assurance that I’m actually sick. It’s been a nightmare to be so ill and then be gaslit on top of it it awful. 🙁

@10987654321-I am telling you the same thing happened to me. What you are describing exactly. After my sinus surgery. The way you are describing how you walk etc...
I was told by the ENT when I went back for follow up and complaints, that I had “conversion disorder” also.
They seem to have a script for this.

Before I was completely fine. Physically and mentally fit, more than 100% healthy.

Afterwards, the same things you are describing happened to me.

You can private message me if you would like. And I can explain what I have learned.

My questions for you are:
•What were your presenting symptoms that took you to an ENT, with whom conducted surgery?

•What was the exact surgery performed, meaning the anatomy and areas?

•Have you obtained a post surgical scan and different ENT opinions?

I can try to give you more advice, I just need a little more detail on your experience.

Be careful of people who are giving you random diagnosis, causing you more anxiety while going through this. If they don’t know your history it is not helpful if they are giving guidance based on symptoms that are a cause of a bigger picture.

Did you ever find out what was wrong? How are you doing now?

I presume you’ve been seen by medical doctors and have turned to this forum for answers to your ailment issues they couldn’t provide or you were unwilling to accept. Your symptoms sound like sinus, TMJ, eye but nothing definitive no I wonder if you’ve considered seeing a psychotherapists? Since you have PN like many of us you most likely are on some medications. Could your medication be causing some of the neurologic symptoms? People often forget about our mental status and how intricate a role it plays in our health. I hope you find answers.