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Bronchiectasis and Gerd

MAC & Bronchiectasis | Last Active: Sep 18, 2020 | Replies (18)

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@irene5

@clpc If you have been diagnosed with MAC through a culture that grew that organism, then you have MAC. I think the confusion with a “gut” issue comes from the fact that many people with MAC have GERD (acid reflux basically). Also, people with nodular MAC have nodules because of the infection. If the nodules grow bigger than a certain size ( some doctors vary on what size) then it will be biopsied to rule out cancer. An endoscopy can tell if you have any esophageal inflammation or erosion. Then, based on symptoms a doctor can tell you if you have Gerd, even the silent type. I’m sorry you are receiving vacillating opinions. I am sure you are frustrated. irene5

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Replies to "@clpc If you have been diagnosed with MAC through a culture that grew that organism, then..."

I see it the way you see it. But the recent doc acted like it was not even MAC tho i tested positive on gold standard test in multiple ways and then had multiple gastro tests which all came back negative. . I do not look like a sick person, most of time. Seriously I think that’s part of issue. Anyway, it took wind out of my sails, I quit airway clearance, started getting chills again. My home doc ignored outside expert. It’s confusing.