Hello @tearose! I appreciate you posting an update. First, please accept my condolences on the death of your sister. I'm sorry that you lost this important relationship. I'm sure that you were close.

I'm really sorry to hear that you are nowhere closer to having an answer or treatment plan for this very uncomfortable situation. As a patient myself, and not a medical professional, I would encourage you to get a second opinion. If you are near a multi-disciplinary medical center (like a university medical school or a facility like Mayo Clinic) I would go there for a second opinion.

Medical centers like the ones I named tend to have more research at their fingertips and are good places to go for treatment and diagnosis of hard-to-treat problems.

I'm wondering if you have contacted the doctor who performed the biopsy to see if a fever is normal in your situation? If not, please do so today. Call and leave a message for the doctor or talk with his nurse or PA and let them know about the low-grade fever, just to be sure it is normal after a biopsy.

I look forward to hearing from you again. Will you post another update and let me know how you are doing?

@tearose Im sorry that you’re having such a difficult time finding out what’s going on. The following site has information from the American Autoimmune Related Diseases Association that I found because getting a diagnosis isn’t easy. I know, first hand

See if the suggestions are helpful.