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@mrbill

You absolutely have to be your own advocate when it comes to health care. Ask questions, check medication, etc. I am also taking Zytiga for Cancer treatment. It seems you cannot bring your own meds to hospital. Had a difficult time convincing staff that I absolutely needed this drug. It was between me and further metastasis. Finally at hospital they let me bring it in and was administered by hospital pharmacist. After it took me some time to convince duty nurse I had to take one hour before food.
Even though I was scheduled for nebulizer four times daily, it was hit and miss till I said something.

No I am no longer on o2. Respiratory nurse said I should stay with treatment until I do 6 minute walk. Which I will not do within current environment. Since I left hospital care I do not use nebulizer either. If I felt some type of episode coming on I would use either nebulizer or rescue inhaler. But that has not happened. o2 levels stay between 93 – 98. The did give me an Airlife lung exercise device which I do use twice a day to improve lung capacity. Once again I am only a patient, and because I may do something against doctor's recommendation, it doesn't make it right.

Past experience has taught us a valuable lesson. When in doubt – question. You have to be your own advocate.

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Replies to "You absolutely have to be your own advocate when it comes to health care. Ask questions,..."

@mrbill– Oh, so true about being a self-advocate. The last time I was in the hospital I packed a couple of medications that I might have needed. The Hospitalist was a dingbat and took so long in getting 2 Tylenol for me. I finally told her that I had some and if she didn't order them I'd take them myself. I finally had to take them myself. She was looking to see if it would so something to my blood. I take responsibility for anything that I do regarding y health and this should not be an example of hospital behavior.

It's good to hear that you are off O2 and are monitoring yourself. I use a new inhaler, Trelegy Ellipta. It's made a big difference in my breathing.

It's always good to speak with you. I'm guessing that anything above 90 is safe, even if not optimal for O2 levels?