← Return to Cryoglobulinemia not caused by hepatitis or lymphoma?

Discussion
Comment receiving replies
@modens

Lots of labs and they feel they have ruled out any underlying disease

Jump to this post


Replies to "Lots of labs and they feel they have ruled out any underlying disease"

@modens Just a thought but have you discussed the tapering down of the methyl prednisone with your doctor to see if that is a possible cause of the return of some of your symptoms? I've had 2 occurrences of polymyalgia rheumatica (PMR) and tapering down too fast made the pain come back quickly. I took 3+ years to taper off of prednisone the 1st time and 1-1/2 to taper off the 2nd time.

Wondering if your doctors think you might have Mixed Cryoglobulinemia which is another rare form of the disease.

NORD – Mixed Cryoglobulinemia: https://rarediseases.org/rare-diseases/mixed-cryoglobulinemia/

  Request Appointment