← Return to Unresolved Colon/Appendix Issues and Spinal Epidural Lipomatosis (SEL)

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@bonnieb81

Well, here I am again! I know that what I have had diagnosed is very rare, not one but 2 serrated adenoma sin my appendeceal orifice (appendix) and thickening in cecum! So I went to yet another surgeon at UTSW,Dallas,&anither catscan,this time absolutely nothing of previous colonoscopies,and 3cstscans showed anything!Surgeon says polyps removed,I know not true as I have reports and I know they were biopsies only.Now he wants yet a third colonoscopy in this 18 mi period.to check on thickness in cecum convening of ‘malignancy! BUT,the colonoscopy never discovered thickness it was the 2nd catscan!i still don’t have closure if I have potential of colon cancer or what the thickness in cecum is? (Radiologist stated concerning malignancy!) I tried to get appt at Mayo but they will NOT see me! Originally said they could make appt ‘if’ I ‘HAD’ malignancy! I can’t find out! Now what! It’s my understanding that these sessile poylp s can only be removed by resection of colon. Not that I want any surgery but I need to know! I’m stressing out! Age 82.6 yrs old.... 90 yr old husband!! Thank you anyone!

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Replies to "Well, here I am again! I know that what I have had diagnosed is very rare,..."

@bonnieb81 You certainly have been given a lot of mixed messages. How frustrating that must be. I certainly admire your persistence in seeking some answers. Keep advocating for yourself.

Do you have help with your husband's care or does all of the responsibility rest with you?