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Unresolved Colon/Appendix Issues and Spinal Epidural Lipomatosis (SEL)
Colorectal Cancer | Last Active: Oct 15, 2021 | Replies (27)Comment receiving replies
@bonnieb81 Wow, this has been quite a wait. No wonder you are concerned. You state you are frustrated working with TX Oncology - where are you located? Perhaps someone in the group can suggest another physician or group to see you. Are you still your husband's caregiver as well?
Sue
Replies to "@bonnieb81 Wow, this has been quite a wait. No wonder you are concerned. You state you..."
Hi all… I’m in Dallas area, if anyone has an oncology specialist ,(colon) I still need closure on my initial diagnosis 2018 … Surgery July14, 2021… with a written explanation of the surgical procedure which completely changed in description ‘after’ surgery!!! Still no explanations if why the descrepancy in details of procedure… ! Now a follow up another colonoscopy July 2022!
I’ll be 84!!!!
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Yes, thank you I’m still my husbands caregiver. I’m in severe pain in my back (spine w/new mri showing major SEL Spinal Epidural Lipomatosis and a nodule on Adrenal which may also be Lipomatosis future testing..plus Lipomatosis in colon I was verbally told by Radiologist but not recognized by surgeons. I tried Mayo in Jacksonville Fl. Again but they won’t give me an appt. any help on how to get a Dr. Specializing in Lipomatosis as it’s thruout my body. MRI’s for 13 yrs verifies it. But not acknowledged. I’m at a loss! 82 and losing ability to walk without extreme pain. I know this is not the correct venue for spine, adrenal etc. though I think it’s all inclusive with colon and colorectal issues. I’m very depressed and seriously ill.