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Replies to "Hello Don and Flib! I hear you Don, about our time being 'hijacked'. I complained to..."
MAC & Bronchiectasis | Last Active: Jun 16, 2020 | Replies (11)
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Hello Don and Flib! I hear you Don, about our time being 'hijacked'. I complained to my new dr at Mayo last week and confessed that I have neglected my last two months of inhaled toby treatments due to medicine fatigue. She took me off all antibiotics of which I have been on monthly since 2013. She said to try going without for awhile and see what happens. She did say to stay the course with albuterol and the inhaled saline. It was her opinion that good, dedicated, lung hygiene was the best thing we can do with this disease. Now that I am off of all antibiotics, I plan to be hyper-vigilant about my lung hygiene.
Replies to "Hello Don and Flib! I hear you Don, about our time being 'hijacked'. I complained to..."
Teri, I trust you're taking dietary measures to support your gut microbiota in face of the siege it been under since 2013. Don
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Hi Terry and all! I believe the best thing I have done was to get off all antibiotics until I really need them. I feel so much better and no coughing or mucus. I am struggling with RA and it is really a daily struggle. I have pains that unbearable at times and it’s worse at night. I just got my plaquenil compounded and I hope this will help. I started about a week ago so I’m waiting. Also it’s not covered by insurance which is a bit crazy. The cost is 86$ monthly. But I’m willing to do it if it works. Anyone have any information on RA meds that works please let me know. Thanks and stay safe, hugs Rita.