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robtlhughes (@robtlhughes)

Nerve Conduction Study: Risk vs. Reward

Neuropathy | Last Active: Jun 3, 2020 | Replies (16)

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Thanks. There are very few pros (eg, confirm what I already know) and a whole lot of cons. I'll probably stay home.

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Replies to "Thanks. There are very few pros (eg, confirm what I already know) and a whole lot..."

@robtlhughes I'm one of those people who have to know everything about my health. I drove to Portland Oregon to try to learn more about my neuropathy. It's another excellent teaching hospital, where I could have tests that my local neurologist couldn't do. I came away from that knowing very little more than I already knew. But I did learn a couple of things that were helpful. They found genetic markers for neuropathy – which was kind of obvious, knowing that my father and my 5 siblings all had/have it. The top doc did say that I'm in the early stages of autonomic neuropathy. So, the time and effort and expense were worth something. Knowing about AN has been helpful as I see various specialists – the ophthalmologist has a better understanding of my double vision, the urologist sees the effects of AN in my urinary urgency issues and ED, the speech therapist can attribute my esophageal dysmotility to AN, and the list goes on.

For me, knowledge is power. It's astounding how much information is out there, just a click away. We can Google our symptoms or send them to our doctor's portal and find out what's going on without getting up from our recliner. Not to mention being able to Zoom with our children and grandchildren any time we want to. That's especially nice when our kids live so far away, and even more so during this pandemic.

Some things can wait. Talking with a super specialist will be just as helpful a few months from now when it will be safer to travel.