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@mountainseeker

Good Idea @hopeful33250, I did look into that in March. If my insurance would have covered it I would have driven the 6 hours to UW in Seattle. Unfortunately they do not.

@johnbishop and @colleenyoung I will call the appointment office and see if they can give me more details. I’ve been trying to get in to any neurologist here but haven’t thought about seeing a different type of Mayo trained doctor. I’ll see what I can find within a couple hours drive. Does a Mayo trained doctor referral help any more than a non-Mayo doctor?
I haven’t yet tried AZ or FL locations, wanted to get a better idea of why I was denied first so that I don’t make the same mistakes.
I was diagnosed with an Acoustic Neuroma/Schwannoma in the ER after an MRI a month ago. The ENT I followed up with said based on a old MRI from 2006 that is in fact a Meningioma. He is sending me to a Neurosurgeon that he works with – appointment on Tuesday. I just saw a Radiation Oncologist about Gamma Knife who also says it’s an Meningioma. But when I tried to get an appointment with another Neurosurgeon, for a second opinion, he won’t see me because he thinks it’s an Acoustic Neuroma and “that I need to see a ENT.” I’m paying for the Neurosurgeon that will see me out of pocket because he’s not covered by my insurance. But can’t afford to have him do the surgery. Insurance only will cover local ones from the same clinic as the one that denied me. So will have to travel for that now.

Thank you all for your kind words and advice. I truly appreciate it.

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Replies to "Good Idea @hopeful33250, I did look into that in March. If my insurance would have covered..."

@mountainseeker, I think you are wise to find out more details first from the appointment office. Mayo Clinic also has something called the Brain Tumor 48-hour Access program. When you call at any of the 3 campuses, appointments are available within 48 hours http://mayocl.in/1mtmR63. You might want to inquire about it as it would appear Mayo experts could help clarify the diagnosis.

Mayo-trained doctor referrals are not preferred over other physician referrals. Sometimes a physician referral can be helpful because they can provide additional medical information and talk directly with their peers. But self-referrals are equally considered.

Another option is seeking care within the Mayo Clinic Care Network. The Mayo Clinic Care Network is a select group of independent health systems that are granted special access to Mayo Clinic's extensive knowledge and world-leading medical expertise. Carefully vetted and selected for their commitment to high-quality patient experience, care network members share Mayo Clinic's goal of providing patients the care they need, close to home, at no additional cost to the patient. You can read more here: https://www.mayoclinic.org/about-mayo-clinic/care-network

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