Depth electrodes to monitor of seizures deep in the brain

Posted by lsittll @lsittll, May 22, 2020

I have seizures that cannot be seen from a surface EEG. They were sure I had epilepsy when I was diagnosed with it but they couldn't prove it. I was referred where they surgically implanted depth electrodes into my brain. They drilled holes in my skill and implanted electrodes into the brain. Then they found the seizure focus. The seizures come from deep within the brain. I've never known or heard of anyone having this. Has anyone else ever had this done?

Interested in more discussions like this? Go to the Epilepsy & Seizures Support Group.

@lsittll
I’m curious why you decided to have the intercranial EEG? Was it because you were seriously considering having epilepsy surgery? How many seizures were you having prior to the EEG?
Take care,
Jake

REPLY

Our son was on 5 anti seizure meds and still having 1 tonic clonic every 3 weeks or so.
Epileptologist recommenced this as next step to see if surgery an option

REPLY
@jakedduck1

@lsittll
I’m curious why you decided to have the intercranial EEG? Was it because you were seriously considering having epilepsy surgery? How many seizures were you having prior to the EEG?
Take care,
Jake

Jump to this post

Hello Jake,

My parents made these decisions for me as I was 17 at the time. The doctor recommended surgery so they went ahead with the recommendations to control the many seizures I was having then. It's been over 40 years since then so I have no idea of how many seizures I was having prior to having the depth electrodes inserted.

You take care too.

Laurie.

REPLY
@lsittll

Hello Jake,

My parents made these decisions for me as I was 17 at the time. The doctor recommended surgery so they went ahead with the recommendations to control the many seizures I was having then. It's been over 40 years since then so I have no idea of how many seizures I was having prior to having the depth electrodes inserted.

You take care too.

Laurie.

Jump to this post

Thank you Laurie.
Do you know if they had the nasal electrodes back when you had your intercranial EEG or the type that is put in your cheek? I forgot everything about those days.
Jake

REPLY

Hello Jake.

They had those horrible nasal electrodes in those days. I;ll never forget them putting those things in my nose and it feeling like they were going to go to my throat. Yuck! When When seizure monitoring was done at Johns Hopkins about 10 years ago they used those things you put in your cheek, sphenoidal electrodes they said. When my doctor, now at Univ. of Maryland and head of the epilepsy monitoring unit, mentioned seizure monitoring I said because my seizures are so deep in the brain you can only record mine if you use nasal pharyngeal electrodes. She told me they don't use them anymore. They probably use the ones you put in your cheek but she didn't say what they now use. .

REPLY
Please sign in or register to post a reply.