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Masks are just not masks

Lung Health | Last Active: Apr 11, 2020 | Replies (20)
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@teammayo1

Hi, I have a very rare lung disease called, Pulmonary Alveolar Proteinosis, I have had a whole lung lavage, AKA cleaning out of your lungs, 2 weeks apart in 2019. anyway, Thank goodness for the Mayo Clinic in Arizona, they found my breathing problem and am currently waiting another Whole lung lavage to take place after all this craziness goes away, I also have to be on a very interesting medication Leukine, that is keeping my surfactant at bay. Thank you

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Replies to "Hi, I have a very rare lung disease called, Pulmonary Alveolar Proteinosis, I have had a..."
Merry, Volunteer Mentor | @merpreb | Apr 9, 2020

@teammayo1- Id' also like to welcome you to Mayo Clinic Connect. I am a 22+ yr lung cancer survivor with a different sort of lung cancer. It's called Multifocal adenocarcinoma of the lungs. Each nodule that first appears as ground glass is considered primary cancers. I have a lot! When was your Pulmonary Alveolar Proteinosis discovered? What are your symptoms other than shortness of breath?

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