A New Kind of Grief in These Times

Posted by Ginger, Volunteer Mentor @gingerw, Apr 7, 2020

If you are like me, you might be feeling uncomfortable, unsteady in your daily activities, perhaps unable to pinpoint just why you feel "off".

Our lives have been turned upside down recently, and this might continue for the near future, but it is not permanent. How we relate to people has changed, how we spend our days is quieter [unless you have kids at home!], a nonchalant hug to a friend is not a good idea. Gatherings, like a meeting, a health club, a place of worship, a sports activity, even school, are but a temporary memory. We have had to become better versed in technology to stay connected, if we want to visit. Celebrations and memorials are on hold.

I was recently given this article, and it really makes sense to me! While my personality lends itself to social isolation, I still miss the occasional interaction with my fellow humans.

- That Discomfort You’re Feeling Is Grief https://hbr.org/2020/03/that-discomfort-youre-feeling-is-grief

What do you grieve in these times? How are you handling this discomfort/grief, what are you doing to minimize lasting effects?

 

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

@team4travis

I've followed this thread for a few days now, debating whether to reply. For me, it's somewhat of a hot button. My friend, who is a psychology professor (certified in thanatology, the scientific study of death) and fellow bereaved parent, has been discussing the difference between grief and mourning. She's wondered if the feelings people have right now in relation to the pandemic are actual, profound grief or more accurately defined as fear, worry, anxiety, uncertainty?
After experiencing compound traumatic grief of multiple losses in a 6 year period (my infant twins to extreme prematurity, my father & my husband both to cancer and my last living child to a rare and undiagnosed disease, plus the deaths of my 2 Great Danes,) I find it a little difficult to equate true profound grief with people complaining they can't get their favorite food or can't get their hair done or are forced to spend 24 hours a day with your spouse/partner & children.
I'm not dismissing someone else's feelings. I just wonder if the social isolation, distancing and stress of the pandemic might be causing some loss of perspective? As @gingerw said, "Our lives have been turned upside (down) recently." Yes, that is true. But for the most part, the majority of Americans will at some point be able to resume life with their families still around them. Family is a precious gift that I can never replace.
Thank you for reading my 2 cents on the subject. Everyone stay safe and remember to count the blessing you still have.

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@team4travis- Hello. Oh, my goodness where to start with all that you've been through. I don't think that anyone is comparing the loss of loved ones to the loss of peanut butter. I started a discussion in the Lung Health group so that people could discuss their feelings and be aware of facts, not myths. Also, Connect is a place to vent, complain, gripe and yell. It might be the only place that some people have to do this. We are here to support everyone. We are patients helping patients. I am a mentor for the Lung Cancer and Lung health Groups because I have stage 4 lung cancer. And have had lung cancer for 22+ years. Shortly before my cancer, I lost my mom and then 6 months later my twin's daughter was murdered. Then a few years after that my twin died.
So I certainly understand your anger and I can't imagine the grief that you feel over the loss of so many immediate family members. I am truly sorry for your losses. I really believe that Ginger is right. Our lives have been upended and it's troubling to see all of the confusion and because of the lack of authority by people who can make good decisions and don't. Fear is prevalent because we have no direction accept to stay home, wear masks and stay 6' apart. We are afraid when this will end, what the future holds and what it will look at. People have lost jobs, money, and security. It's no wonder that people feel so much angst, and sometimes over the most minute things too! And sometimes people use words that truly don't define what they mean. You and your friend are right, it's not deep down terrible grief like that of family members dying but as you said, "fear, worry, anxiety, uncertainty."
Again, my heartfelt condolences and I hope that you will find peace in the future.

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@team4travis What can I say that merpreb didn't. Im so sorry for all your losses . This is grief that you have . You are a strong women to keep going throughout all what you have gone through. Yes life isn't fair but again we weren't promised that it would be . Connect is a place to vent , we with all our problems understand this so come back when you need to we are all here for you . Take care be safe

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@merpreb

@team4travis- Hello. Oh, my goodness where to start with all that you've been through. I don't think that anyone is comparing the loss of loved ones to the loss of peanut butter. I started a discussion in the Lung Health group so that people could discuss their feelings and be aware of facts, not myths. Also, Connect is a place to vent, complain, gripe and yell. It might be the only place that some people have to do this. We are here to support everyone. We are patients helping patients. I am a mentor for the Lung Cancer and Lung health Groups because I have stage 4 lung cancer. And have had lung cancer for 22+ years. Shortly before my cancer, I lost my mom and then 6 months later my twin's daughter was murdered. Then a few years after that my twin died.
So I certainly understand your anger and I can't imagine the grief that you feel over the loss of so many immediate family members. I am truly sorry for your losses. I really believe that Ginger is right. Our lives have been upended and it's troubling to see all of the confusion and because of the lack of authority by people who can make good decisions and don't. Fear is prevalent because we have no direction accept to stay home, wear masks and stay 6' apart. We are afraid when this will end, what the future holds and what it will look at. People have lost jobs, money, and security. It's no wonder that people feel so much angst, and sometimes over the most minute things too! And sometimes people use words that truly don't define what they mean. You and your friend are right, it's not deep down terrible grief like that of family members dying but as you said, "fear, worry, anxiety, uncertainty."
Again, my heartfelt condolences and I hope that you will find peace in the future.

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Yes, Connect is a place where people can share their feelings, worries, concerns, vents, rants, etc. My earlier post was an opportunity to do just that.
We both have experienced multiple battles and losses. Thank you for your condolences. You have mine as well.

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@team4travis

I've followed this thread for a few days now, debating whether to reply. For me, it's somewhat of a hot button. My friend, who is a psychology professor (certified in thanatology, the scientific study of death) and fellow bereaved parent, has been discussing the difference between grief and mourning. She's wondered if the feelings people have right now in relation to the pandemic are actual, profound grief or more accurately defined as fear, worry, anxiety, uncertainty?
After experiencing compound traumatic grief of multiple losses in a 6 year period (my infant twins to extreme prematurity, my father & my husband both to cancer and my last living child to a rare and undiagnosed disease, plus the deaths of my 2 Great Danes,) I find it a little difficult to equate true profound grief with people complaining they can't get their favorite food or can't get their hair done or are forced to spend 24 hours a day with your spouse/partner & children.
I'm not dismissing someone else's feelings. I just wonder if the social isolation, distancing and stress of the pandemic might be causing some loss of perspective? As @gingerw said, "Our lives have been turned upside (down) recently." Yes, that is true. But for the most part, the majority of Americans will at some point be able to resume life with their families still around them. Family is a precious gift that I can never replace.
Thank you for reading my 2 cents on the subject. Everyone stay safe and remember to count the blessing you still have.

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@team4travis Each person has their own journey, one that cannot be duplicated by anyone else. Things/events/situations that trigger responses are also different for each of us, and how we respond is different. You are a strong person made even stronger by your experiences. I am sorry you had to go through all those. In these times of forced isolation, and a new way of daily living, people are discovering perhaps, that what was taken for granted, shouldn't be, and that there are many things we embraced before that simply are not necessary while refocusing on those that make us feel better/live better/simpler. Just my humble opinion!
Ginger

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@team4travis

Yes, Connect is a place where people can share their feelings, worries, concerns, vents, rants, etc. My earlier post was an opportunity to do just that.
We both have experienced multiple battles and losses. Thank you for your condolences. You have mine as well.

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@team4travis- Thank you I did realize that. How long ago was your last loss? After my niece was killed I couldn't be around general chit chat or hear anyone complain about inconsequential things, as you have stated. I should have mentioned this. I couldn't put myself in their place for anything and I didn't try. I was so angry. I was just glad that my mom wasn't alive to witness the horrors of her death. Someone asked me how I kept going? I just did, one tiny step at a time, even if I was blinded with anger and that pain you get I still took those steps. It sounds as if you have too.

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@team4travis

I've followed this thread for a few days now, debating whether to reply. For me, it's somewhat of a hot button. My friend, who is a psychology professor (certified in thanatology, the scientific study of death) and fellow bereaved parent, has been discussing the difference between grief and mourning. She's wondered if the feelings people have right now in relation to the pandemic are actual, profound grief or more accurately defined as fear, worry, anxiety, uncertainty?
After experiencing compound traumatic grief of multiple losses in a 6 year period (my infant twins to extreme prematurity, my father & my husband both to cancer and my last living child to a rare and undiagnosed disease, plus the deaths of my 2 Great Danes,) I find it a little difficult to equate true profound grief with people complaining they can't get their favorite food or can't get their hair done or are forced to spend 24 hours a day with your spouse/partner & children.
I'm not dismissing someone else's feelings. I just wonder if the social isolation, distancing and stress of the pandemic might be causing some loss of perspective? As @gingerw said, "Our lives have been turned upside (down) recently." Yes, that is true. But for the most part, the majority of Americans will at some point be able to resume life with their families still around them. Family is a precious gift that I can never replace.
Thank you for reading my 2 cents on the subject. Everyone stay safe and remember to count the blessing you still have.

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Team4travis, thank you for your thought provoking post. Nothing can compare to the deep, ongoing grief of losing loved ones to death. I think your friend is correct in defining what so many are experiencing now as "fear, worry, anxiety and uncertainty" and while certainly real and troublesome, not in the same realm of the loss of life grief we experience when death separates us from our beloveds.

Indeed as you wrote: "This is a time for all of us to remember to be counting daily the blessings we still have". Thank you.

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@merpreb

@team4travis- Thank you I did realize that. How long ago was your last loss? After my niece was killed I couldn't be around general chit chat or hear anyone complain about inconsequential things, as you have stated. I should have mentioned this. I couldn't put myself in their place for anything and I didn't try. I was so angry. I was just glad that my mom wasn't alive to witness the horrors of her death. Someone asked me how I kept going? I just did, one tiny step at a time, even if I was blinded with anger and that pain you get I still took those steps. It sounds as if you have too.

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Oh, my, Merry, and my sincere and deepest condolences to you as well. Finding the will and courage to take those tiny steps to keep going each day after tragedy is a mark of daily heroism in my book.

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@gingerw, I wonder at times if anything will ever be the same again. Being quiet and doing things on my own never bothered me before. But times have changed. Almost everything that I try to do involves an extreme level of effort and expertise.

As I write this, my oldest daughter is in an LTAC facility, following her six week stay in the hospital. My husband has been hospitalized since March 9th. Hopefully he will be released sometime next week.

When I shop for necessities, I wear a mask. I use hand sanitizer. Any packages I buy are "in quarantine" for 24 hours. I disinfect my shoes after a supply run. I wash my clothes and take a shower after going outside to a store.

When I speak with my family I have a pass code that I have to give the nurse before they can talk to me. My husband is being treated for depression, following his three surgeries. He has been through so much.

The anxiety that I feel from having to learn all these new protocols has left my head spinning. I pay my daughter's bills. And there is a certain protocol for that as well. So often you cannot speak with a real person. You never know if a business is open or not. So you have to call ahead and hope someone answers.

All this seems trivial to some, I am sure. But it is so much pressure on me, as I am rhe only one who can do any of these things. I dont like going out to take care of business, because I fear bringing back a virus. I want my home to be safe for my Grandson.

These are my fears. Mostly, though, I am ok. Oh, did I fail to mention that I cannot vist my loved ones? Nope. No visitors allowed.

Holding the fort,
Mamacita Jane

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Mamacita - trivial, no, not at all. You have your hands full, and a sad, lonely situation on top of that. My heart goes out to you.

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@mamacita

@gingerw, I wonder at times if anything will ever be the same again. Being quiet and doing things on my own never bothered me before. But times have changed. Almost everything that I try to do involves an extreme level of effort and expertise.

As I write this, my oldest daughter is in an LTAC facility, following her six week stay in the hospital. My husband has been hospitalized since March 9th. Hopefully he will be released sometime next week.

When I shop for necessities, I wear a mask. I use hand sanitizer. Any packages I buy are "in quarantine" for 24 hours. I disinfect my shoes after a supply run. I wash my clothes and take a shower after going outside to a store.

When I speak with my family I have a pass code that I have to give the nurse before they can talk to me. My husband is being treated for depression, following his three surgeries. He has been through so much.

The anxiety that I feel from having to learn all these new protocols has left my head spinning. I pay my daughter's bills. And there is a certain protocol for that as well. So often you cannot speak with a real person. You never know if a business is open or not. So you have to call ahead and hope someone answers.

All this seems trivial to some, I am sure. But it is so much pressure on me, as I am rhe only one who can do any of these things. I dont like going out to take care of business, because I fear bringing back a virus. I want my home to be safe for my Grandson.

These are my fears. Mostly, though, I am ok. Oh, did I fail to mention that I cannot vist my loved ones? Nope. No visitors allowed.

Holding the fort,
Mamacita Jane

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My dear @mamacita, I am so sorry to hear of the burdens you are carrying. I can only imagine how difficult it is for you. While we all feel like fish-out-of-water right now, but having two family members hospitalized and being unable to visit makes it heartbreaking for you. Take care of yourself, my friend, and realize you are cared for by us and we feel your pain right now.

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