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maryella7 (@maryella7)

Klippel Feil Syndrome: Ear molds and getting a good fit

Hearing Loss | Last Active: Mar 31, 2020 | Replies (30)

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@julieannarcand

This is extremely interesting to me!! I was told that I had abnormally small ear canals due the the Klippel Feil; but due to a recent ( I think but now am wondering) brain tumor and radiation, I have a great deal of ear wax coming especially from my right ear ( this may be because it is the side I lay on most. It seemed to have worsened after radiation. Where are you getting the tubing and how was it diagnosed?

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Replies to "This is extremely interesting to me!! I was told that I had abnormally small ear canals..."

@julieannarcand
Good morning
I’ve gotten extra tubing from my Audi or ordered it online from places such as Westone or Oaktree. There are many online suppliers of hearing aid accessories and batteries and you can shop around for good prices. I’m not sure if you are asking me if how my hearing loss was diagnosed.

FL Mary

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