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Just found out I have mycobacterium abscessus!
MAC & Bronchiectasis | Last Active: Apr 12, 2023 | Replies (118)Comment receiving replies
I too have been diagnosed with Mycrobacterium Abscessus. I am currently being treated by U of MN Infectious Disease Dr. started on Iv infusions of Amikacyn once a day, Tigecycline 2 infusions daily & Linezolid orally twice a day. Linezolid made me very, very sick. Dr finally took me off it and I continue with the infusions everyday. It’s been 2&1/2 months so far of twice daily infusions. I Nebulizer 3% saline, which doesn’t produce for me in airway clearance, am waiting for a prescription for 7% & hoping I can be more productive with this. I Nebulize once a day. I’ve not seen a respiratory therapist to help me with this & hope I’m doing it right. Maybe when Covid is over I can receive this assistance. Any advice is appreciated.
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You do so much already. Would it be possible for you to nebulize twice a day instead of once; I realize that you don't get up much when you do so it may not be worth the time (but things may improve if you use the 7%)? Dr. Huitt advised me to do it twice a day because more mucous plugs showed on my CT. When you do see a respiratory therapist, please ask him or her about using a fluttering device like an aerobika when you nebulize. Might you be eligible for a vest? Dr. Huitt suggested that I could use the vest when I nebulize. I appreciate your sharing your experience; thank you. Wishing you good luck and success.