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oyeks (@oyeks)

Seizures despite medication

Epilepsy & Seizures | Last Active: May 12, 2020 | Replies (15)

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@oyeks

Dear all,
I am truly happy connected to this great platform,all your ideas are quit encouraging and are welcome,
My child case is not a focal seizure but each time it occurs she fell down and her body became stev and she jeck say like 2-3mins after which she will fell asleep for like another 10min though our doctor did not specify the type as per say but i think going to the lab is necessary, she has been on tegretol for almost a year now,

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Replies to "Dear all, I am truly happy connected to this great platform,all your ideas are quit encouraging..."

@oyeks
Hello,
The seizures sound like they are generalized tonic-clonic, older terminology was grand mal. if her seizures have not improved in nearly a year I find it odd that the doctor has not either increased her Tegretol or added another medication long before now. Has she been on Tegretol all this time without having her Tegretol blood level checked, if so I would tell the doctor that I wanted a lab slip to get her blood level of Tegretol checked and don’t let them talk you out of it, demand it. Is she seeing a neurologist?