We are as always on their priority wait list, meaning if someone cancels prior to her scheduled appt , they will give us a call. But that never seems to happen. It is very frustrating to the fact that everyone we have been to, says the same thing, she has a rare disorder that we can not identify, you would think that would drive their interest, but it seems they are just waiting for her to have another episode and end up in ICU for a 5th time. We just want someone to try something that will better her life. If they could just find a way to reduce her stiffness where see can open her mouth to properly chew and be able to turn her head to the left or right, would dramatically improve her mental state of mind.