Thanks for reaching out and your article is interesting. Yes, we have mentioned to Emory about going to Mayo clinic but until they inform our insurance company that there is nothing more they can do, the insurance co will not pay for us to go. We have 2 appts with Emory over the next couple of months and we plan on pushing them basically to step up or move out of the way. The only time she gets immediate attention is when she is in ICU, but once she is discharged, she just becomes an number and the attention we get at the neuro-clinics is test for this and see you in 4-6 months. She is emotionally and mentally drained on top of the main physical issues and just looking for guidance.