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mikaela24 (@mikaela24)

Anyone had Deep Brain Stimulation for Epilepsy?

Epilepsy & Seizures | Last Active: Mar 2, 2020 | Replies (4)

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@lisalucier

Hi, @mikaela24 – it makes sense that if you felt traumatized by previous brain surgeries for epilepsy, you'd feel some fear at the thought of surgery to implant electrodes for deep brain stimulation (DBS). I applaud your taking the step of trying to find out more about it and talk to others who may have experiences or personal research to share. I'd like to introduce you to @babette @hopeful33250 @jakedduck1 @susan62 @leftlucy, who may have input for you on DBS as you consider the recommendation made to you when you were at Mayo Clinic.

Also, this Mayo Clinic information on DBS may be helpful https://www.mayoclinic.org/tests-procedures/deep-brain-stimulation/about/pac-20384562, if you've not yet seen it.

Will you share a bit more about the type of epilepsy you were diagnosed with and when you were diagnosed?

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Replies to "Hi, @mikaela24 - it makes sense that if you felt traumatized by previous brain surgeries for..."

I have focal epilepsy throughout my temporal and frontal lobe. They explained it as focal epilepsy that was everywhere and my epilepsy was the perfect spot for this. I guess you could say they can't really explain the epilepsy. Focal Complex Partial Epilepsy Intractable Without Status Epilepticus was the final diagnosis.