Hi, @edijoke Welcome to Connect. You have been going through this pain for quite a while. That's amazing that it has yet to be diagnosed. Your mention of abdominal migraine caught my eye, I believe my son had them when he was pre-puberty -- typically if a child gets them pre-puberty they often do not get migraines after puberty.
I wish I could say something to help you but your situation is extremely complex. I just wanted to welcome you and to hope that you do get responses from someone who may have something or have had something similar. It sounds as if you have gone to the best possible places trying to find a diagnosis, you must be very frustrated. Hopefully, you will find that one doctor at some top-level hospital, preferably a teaching hospital, who will finally figure out what the problem is. Mayo is ranked #1 but there could be a doctor at one of the other top-ranked hospitals who would see something that a prior doctor did not.
I know the frustration of not being diagnosed, but thankfully I only dealt with it for about a year and a half.
JK

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