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sadee (@sadee)

Ablation do I need it?

Heart Rhythm Conditions | Last Active: Aug 1, 2020 | Replies (7)

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@danab

This is an area i lived thru for about 9 years my problems started with a virus that caused my heart to get larger due to fluids i the sac around the heart and lungs. This caused my heart to get weaker and i had a pacemaker put in as a precaution. Well it was 5 years later that the pacemaker had to save my life when i had my first VT episode that it had to shock me back in rythim. Also during this period i was also on Amiodrone. Well i also had an ablation and it did improve things but my doctor suggested a second one a year later. Well that second one was very successful and i lived a pretty normal life until 2015. I took some bad advice for a new doctor and had a third. (My prior doctor had moved out of state) well that was a mistake i think but also i may have not helped my situation since i think drinking more than recommend may have damaged my heart more. So after 2015 things got progressively worse and the Aminodrone became toxic to me so i ended up with a heart transplant in Jan 2018. So my advice is yes second opinions are a great idea, Ablations do work well but also i recommend no drinking at all and i also quit smoking back in 2011. And drinking i quit in 2015. But damage was already done. Plus also if it ever gets to a point of transplant which is very unlikely you will have to quit both if you do them, in order to get a transplant . Please ask any questions you may have.

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Replies to "This is an area i lived thru for about 9 years my problems started with a..."

Did you have it done at Mayo?

Thank you so much for sharing your story!! I'm so sorry about your situation, hope you're doing well and healing. I don't smoke or drink but have diabetes. Still haven't gone for EP study, have to make an appointment. Did you have a defibrillator and pacemaker?
You said it shocked you back into rhythm which sounds like a defibrillator. Nowadays I think they're combined. I have been very very concerned (scared of death) about being on the Amiodarone, it frightens me and I have been on it for a year. I saw it has a black box warning and people warn against using it, that it is very toxic. I thought I would be taken off of it but then I was afraid to, that my heart would be out of rhythm and have vt or something.