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Atonic Seizures or Drop Down Seizures

Epilepsy & Seizures | Last Active: May 11, 2021 | Replies (10)

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@jakedduck1

I'm sorry your daughter is having Atonic seizures. I've had Epilepsy for 52 years but never had an Atonic seizure. I know very little about them. Do people with Atonics get Auras? Does your daughter? I suspect not because of the injuries. Are they Focal Motor Atonic or Generalized? Any loss of consciousness or awareness?
What medications is your daughter on?
I don't have a lot of confidence in the VNS. Has it decreased the frequency of her seizures?

Below is a link on Atonic Seizures. If you scroll down people talk about their experiences.

https://www.epilepsy.com/learn/types-seizures/atonic-seizures

Take care,
Jake

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Replies to "I'm sorry your daughter is having Atonic seizures. I've had Epilepsy for 52 years but never..."

My daughter is Developmentally Delayed so she is unable to tells us of any Auras. She does lose awareness when she has one for about 3 to 5 seconds and than wants to know what just happened. Her medications are depacoat, keppra, and globasam. The VNS stimulator seemed to help a little for a short period. Right now she is in wheel chair and can only put a little weight on injured leg for transfers.