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Scott, Volunteer Mentor (@IndianaScott)

The (not so) Hidden Costs of Caregiving

Caregivers | Last Active: Nov 30, 2019 | Replies (12)

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@momkids

Thank You
This is 100% a true fact. Others in our lives have no idea of the cost of care-giving and the life we have been forced to give up and would not care if they did. My husband; in my case thinks funds are endless and his answer to all of his financial needs: I have investments! He cannot perceive the absolute necessity of very wise and controlled spending. He lives in a care facility and was diagnosed with bvFTD in 2017; an impossible and cruel disease to manage. I am not sure where I am suppose to get the funds to sustain my own needs and enjoy my life.

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Replies to "Thank You This is 100% a true fact. Others in our lives have no idea of..."

Hi @momkids, welcome to Connect. Behavioural variant of frontotemporal dementia (bvFTD) certainly is an "impossible and cruel disease to manage." How do you protect yourself from your husband's assumptions that you have endless funds? I assume he doesn't deliver his thoughts kindly.

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