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Becky, Volunteer Mentor (@becsbuddy)

CLIPPERS: Looking to connect with others

Autoimmune Diseases | Last Active: Nov 4, 2022 | Replies (75)

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@ninamichelle

Hi! I’m new here. I also have Clippers Disease.

I recently suffered with headaches and seizures and have been put on a new anti-headache medication that I think made my Clippers worse. I’m getting an MRI tomorrow morning to see what has changed.

When people talk about “balance” issues, what are you experiencing? Do you feel something in your head, or is it just your muscles not cooperating?

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Replies to "Hi! I’m new here. I also have Clippers Disease. I recently suffered with headaches and seizures..."

@ninamichelle
Welcome! Connect is a forum where we all share information on what works and what doesn’t about our health. No professional here, but we do try to help you advocate for yourself.
You asked about balance issues. Well, the answer is both. At least I do. None are terribly serious or really noticeable to others, but I sure can tell. Winter and ice only make it worse. When you have your MRI, make sure it is done with/without contrast—-they get a better reading.
Are you having balance issues? What makes you or your doctors think it’s Clippers? Becky