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packgb19 (@packgb19)

Amyloidosis

Blood Cancers & Disorders | Last Active: Nov 18, 2019 | Replies (12)

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@JustinMcClanahan

Hi @nick0820. You mentioned you have amyloidosis but your tests results and symptoms don't meet the criteria yet for multiple myeloma. Are you in a waiting & watching protocol right now with your amyloidosis?

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Replies to "Hi @nick0820. You mentioned you have amyloidosis but your tests results and symptoms don't meet the..."

Good Evening Justin! At this time no additional protocols are in place relative to Multiple Myeloma. I have been diagnosed with only Amyloidosis and have just completed the Auto Stem Cell Transplant on August 12th. I tolerated the procedure fairly well and have been home recuperating since my discharge at the end of August. The most difficult time for me was from the effects the high dose chemo necessary for the transplant. I continue my follow up with my nephrologist ( Amyloidosis was affecting kidneys only) for labs and PET Scans etc. Overall, I’m truly blessed…..